Research Committee

The Research board  comprises 100+ people who expressed some interest in research issues. Priority has been given to establishing informing research-interested HCPs about upcoming research opportunities, in particular the Solve-RD project and the European Joint Programme for RD (EJP-RD). Solve-RD obtained funding from January 2018, and EURO-NMD as a whole as well as several HCPs are partners of the ambitious research project, further information will be provided to all HCPs on an ongoing basis how they can directly participate and benefit from this ambitious research project. The EJP-RD application was successful and includes EURO-NMD research activities across most pillars and work packages. The programme will start in 2019.

Name Organisation
Emilio Albamonte Nemo Clinical Center
Helge Amthor Hôpital Raymond Poincaré, 92380 GARCHES
Jean-Christophe Antoine Rhône Alpes Neuromuscular center
Carla Battisti Azienda Ospedaliera Universitaria Senese
David Beeson Oxford University Hospitals NHS Foundation Trust
Luca Bello Azienda Ospedaliera – University of Padova
David Bendahan AP-HM
Hélène Blasco CHU Limoges
Serge Braun AFM-Téléthon
Gunnar Buyse University Hospitals Leuven, Neuromuscular Reference Centre
Andrea Calvo AOU Città della Salute e della Scienza di Torino
Antonio Canosa AOU Città della Salute e della Scienza di Torino
Elena Cardaioli Azienda Ospedaliera Universitaria Senese
Filomena Caria ASST “Spedali Civili”
Federico Casale AOU Città della Salute e della Scienza di Torino
Adriano Chiò AOU Città della Salute e della Scienza di Torino
Kristl Claeys University Hospitals Leuven, Neuromuscular Reference Centre
Giacomo Comi Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico Milano (University Hospital Italy)
Claudia Compagnucci Ospedale Bambino Gesu IRCCS
Jozsef Janszky University of Pécs
Caterina Conti Nemo Clinical Center
Sandra Coppens Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Stefania Corti Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico Milano (University Hospital Italy)
Stefano Cotti Piccinelli ASST “Spedali Civili”
Jan De Bleecker UZ Gent
Elke De Vos UZ Gent
Liesbeth De Waele University Hospitals Leuven, Neuromuscular Reference Centre
Nicolas Deconinck Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Adela Della Marina Childrens Clinic Essen University Hospital (University Hospital Germany)
Emilien Delmont AP-HM
Valeri Dhetz CHU NICE
Maria Terersa Dotti Azienda Ospedaliera Universitaria Senese
Elisa Falcier Nemo Clinical Center
Massimiliano Filosto ASST “Spedali Civili”
Serena Gallo Cassarino ASST “Spedali Civili”
Josep Gamez Hospital Universitari Vall d’Hebron
Jeremy Garcia CHU NICE
Malgorzata Gawel SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Elizabetta Gazzerro Istituto Gaslini
Fabio Giannini Azienda Ospedaliera Universitaria Senese
Federica Ginanneschi Azienda Ospedaliera Universitaria Senese
Paolo Girlanda AOU Policlinico “G.Martino” Messina
Nathalie Goemans University Hospitals Leuven, Neuromuscular Reference Centre
Michela Guglieri Newcastle upon Tyne Hospitals NHS Foundation Trust
Kinga Hadzsiev University of Pécs
Rita Horvath University of Cambridge
Isabel Illa Illa Sendra Hospital de la Santa Creu i Sant Pau
Albena Jordanova Expert Centre for Hereditary Neurologic and Metabolic Disorders
Anna Kaminska SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Heike Koelbel Childrens Clinic Essen University Hospital (University Hospital Germany)
Anna Kostera-Pruszczyk SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Norbert Kovacs University of Pécs
Ferenc Kover University of Pécs
Bernhard Landwehrmeyer Universitätsklinikum Ulm (UKU) in cooperation with the Universitäts- und Rehabilitationskliniken Ulm (RKU)
Lea Leonardis University Medical Center Ljubljana
Marta Lipowska SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Hanns Lochmüller Medical Center – University of Freiburg (University Hospital Germany)
Albert C Ludolph Universitätsklinikum Ulm (UKU) in cooperation with the Universitäts- und Rehabilitationskliniken Ulm (RKU)
Christian Lunetta Nemo Clinical Center
Anna Lusakowska SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Eleonora Maestri Nemo Clinical Center
Frédérique Magdinier AP-HM
Laurent Magy CHU Limoges
Alessandro Malandrini Azienda Ospedaliera Universitaria Senese
Cecilia Jimenez Mallebrera Hospital Sant Joan de Déu – Universidad de Barcelona
Michelangelo Mancuso Azienda Ospedaliera Universitaria Pisana (AOUP)
Adnan Manzur Great Ormond Street Hospital
Luca Mauro Nemo Clinical Center
Nicolas Mavroudakis Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Anna Mazzeo AOU Policlinico “G.Martino” Messina
Bela Melegh University of Pécs
Eugenio Mercuri Fondazione Policlinico Universitario A. Gemelli
Maria Judit Molnar Semmelweis University
Tiziana Mongini Azienda Ospedaliera Universitaria Città della Salute  edella Scienza di Torino
Marisol Montolio Duchenne Parent Project Spain
Jennifer Morgan Great Ormond Street Hospital
Wolfgang Müller-Felber Department of pediatric Neurology, Dr.v. Hauner Childrens hospital, Ludwig Maximilians University
Francina Munell Hospital Universitari Vall d’Hebron
Pinki Munot Great Ormond Street Hospital
Francesco Muntoni Great Ormond Street Hospital
Olimpia Musumeci AOU Policlinico “G.Martino” Messina
Andrés Nascimento Hospital Sant Joan de Déu – Universidad de Barcelona
Damjan Osredkar University Medical Center Ljubljana
Alessandro Padovani ASST “Spedali Civili”
Endre Pál University of Pécs
Massimo Pandolfo Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Carmen Paradas Complejo Hospitalario Regional Virgen del Rocío (Regional Hospital Spain)
Davide Pareyson Complejo Hospitalario Regional Virgen del Rocío (Regional Hospital Spain)
Livia Pasquali Azienda Ospedaliera Universitaria Pisana (AOUP)
Lorenzo Peverelli Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico Milano (University Hospital Italy)
Zoltan Pfund University of Pécs
Pim Pijnappel Erasmus MC University Hospital
Anna Potulska-Chromik SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Gauthier Remiche Centre de Référence Neuromusculaire Erasme-HUDERF, Université Libre de Bruxelles
Giulia Ricci Azienda Ospedaliera Universitaria Pisana (AOUP)
Michela Ripolone Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico Milano (University Hospital Italy)
Sabrina Sacconi CHU NICE
Maria Salvado Hospital Universitari Vall d’Hebron
Iciar Sanchez Childrens Clinic Essen University Hospital (University Hospital Germany)
Valeria A Sansone Nemo Clinical Center
Filippo Maria Santorelli Azienda Ospedaliera Universitaria Pisana (AOUP)
Anna Sarkozy Great Ormond Street Hospital
Ulrike Schara Childrens Clinic Essen University Hospital (University Hospital Germany)
Jens Schmidt University Medical Center Goettingen
Monica Sciacco Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico Milano (University Hospital Italy)
Thomas Sejersen Karolinska Universitetssjukhuset (University Hospital Sweden)
Michael Sereda University Medical Center Goettingen
Serenella Servidei Fondazione Policlinico Universitario A. Gemelli
Teresa Sevilla Hospital Universitario y Politécnico La Fe
Gabriele Siciliano Azienda Ospedaliera Universitaria Pisana (AOUP)
Francesco Sicurelli Azienda Ospedaliera Universitaria Senese
Volker Straub Newcastle upon Tyne Hospitals NHS Foundation Trust
Piotr Szczudlik SPCSK, Department of Neurology, Medical University of Warsaw,Banacha 1a Warsaw
Agnes Till University of Pécs
Albena Todorova Expert Centre for Hereditary Neurologic and Metabolic Disorders
Antonio Toscano AOU Policlinico “G.Martino” Messina
Rudy Van Coster UZ Gent
Philip Van Damme University Hospitals Leuven, Neuromuscular Reference Centre
Nadine van der Beek University Hospitals Leuven, Neuromuscular Reference Centre
Anneke van der Kooi AMC Amsterdam
Carlos Virins University Medical Centre Utrecht, Section Neuromuscular Diseases (University Hospital Netherlands)
Ans van der Ploeg Erasmus MC University Hospital
Eva Vlckova University Hospital Brno
Alice Zanolini Nemo Clinical Center
Judith Zima University of Pécs

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern