Essential EURO-NMD Resources
Several essential resources support the EURO-NMD network. Some are provided by the European Commission, while others have been developed in-house by EURO-NMD. Together, these tools help the ERN fulfil its mission: to support high-quality patient care across Europe through streamlined diagnostic and therapeutic resources, and to advance research in neuromuscular disorders.
The User Guide for the website can be found here.
ERNcare 4 UA – Solidarity with Ukraine
EURO-NMD supports Ukrainian patients and healthcare professionals through dedicated resources, including podcasts in Ukrainian.
Podcasts in Ukrainian
- Cardiac Management of Neuromuscular Diseases Podcast
Ураження серця при нервово-м’язових захворюваннях - Dysphagia in Neuromuscular Diseases
Дисфагія при нервово-м’язових захворюваннях - Respiratory Insufficiency in Neuromuscular Patients Podcast
Дихальна недостатність у нервово-м’язових хворих
Patient and Public Education
EURO-NMD provides educational resources for patients, families, caregivers, and the wider public. These materials aim to improve understanding of neuromuscular diseases, support informed decision-making, and encourage multidisciplinary care across Europe.
Nutrition and Symptom Management Resources
- Nutritional care leaflet: “Why Nutritional Care Matters for People Living with Neuromuscular Diseases?”
https://ern-euro-nmd.eu/news/why-nutritional-care-matters-for-people-living-with-neuromuscular-diseases/?highlight=nutrition+management - Webinar: “Nutrition in Myopathies, Including Supplements”
https://ern-euro-nmd.eu/event/nutrition-in-myopathies-including-supplements/?highlight=nutrition+management - Webinar: “Pain Management in Myopathies”
https://ern-euro-nmd.eu/event/pain-management-in-myopathies/?highlight=nutrition+management
ERN Collaborative Platform
The ERN Collaborative Platform is restricted to ERN users. It supports online communication, document management, and event organisation for the ERN Board of Member States, ERN Coordinators, and ERN members.
An EU Login is required to access the platform.
ERN Acknowledgement in Publications and Communications
If you publish or communicate on behalf of an institution that is a member of ERN EURO-NMD, you are expected to acknowledge the ERN in the publication or communication.
Website Task List
The following links provide direct access to key website functions and submission forms.
Account and Profile
- Edit profile
https://ern-euro-nmd.eu/profile/ - Register / Login
https://ern-euro-nmd.eu/login/
Private Member Area
- Groups membership
https://ern-euro-nmd.eu/private/groups-membership/ - Private space
https://ern-euro-nmd.eu/private/ - Shared files
https://ern-euro-nmd.eu/private/shared-files/
Submission Forms
- Add a poster to the website
https://ern-euro-nmd.eu/data-collaboration-forms/create/poster/ - Add a publication to the website
https://ern-euro-nmd.eu/data-collaboration-forms/create/publication/ - Add an event to the website
https://ern-euro-nmd.eu/data-collaboration-forms/create/event/ - Create a news post
https://ern-euro-nmd.eu/data-collaboration-forms/create/post/ - Create an opportunity post
https://ern-euro-nmd.eu/data-collaboration-forms/create/opportunity/ - Propose a new healthcare provider
https://ern-euro-nmd.eu/data-collaboration-forms/create/healthcare-provider/ - Propose a new organisation
https://ern-euro-nmd.eu/data-collaboration-forms/create/organisation/ - Request group membership
https://ern-euro-nmd.eu/data-collaboration-forms/create/group-membership-request/ - Submit an educational activity
https://ern-euro-nmd.eu/data-collaboration-forms/create/educational-activity/
General Form Access
- Data collaboration forms
https://ern-euro-nmd.eu/data-collaboration-forms/

