World Mental Health Day: Mental Health Needs in the Rare Neuromuscular Disease Community
On World Mental Health Day, 10 October, EURO-NMD highlights findings from the EURORDIS Rare Barometer…
October 2, 2026
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Natural history study for MNGIE (Mitochondrial Neuro-Gastro-Intestinal Encephalomyopathy)
MNGIE (Mitochondrial Neuro-Gastro-Intestinal Encephalomyopathy) treatment candidates have emerged, creating hope for clinical trials for patients…
World Mitochondrial Disease Awareness Month 2026
To mark World Mitochondrial Disease Awareness Month, ERN EURO-NMD is pleased to present a special…
ERN-RND Postgraduate Curriculum – Registration Now Open for the Ataxia/HSP Module
Registration is now open for the first module of the ERN-RND Postgraduate Curriculum, focusing on…
CPMS Days: Fall/Winter 2026 Schedule
The Fall/Winter 2026 CPMS Days offer a series of structured, theme-based case discussions utilizing the…
Applications open for the 2027 Open Academy x ERDERA Schools
Applications are open for the EURORDIS Open Academy x ERDERA Schools 2027: two in-person training…
Survey on Hypoglycemia Practices in Pediatrics – MetabERN and Endo-ERN collaboration
Survey on Hypoglycemia Practices in Pediatrics Dear Colleague, We invite you to participate in a…
ERNs paper proposing a 10-points crisis readiness plan for rare disease populations
The ERNs as a group published a position paper on crisis readiness. It proposes a…
Discover our 3 new Patient Journeys!
EURO-NMD is pleased to introduce three new Patient Journeys, dedicated to: Amyotrophic Lateral Sclerosis (ALS)…
New publication highlights the role of European Reference Networks in genetic newborn screening
A new paper published in Frontiers in Public Health explores the key role of European…
EURO-NMD renews support for the EMQN Neuromuscular Disorders EQA Scheme
EURO-NMD is pleased to announce the renewal of its agreement with the European Molecular Genetics…
Learn how to use the Clinical Patient Management System (CPMS)
Learn how to use the Clinical Patient Management System (CPMS), the secure European platform that…