CPMS Days: Fall/Winter 2026 Schedule
The Fall/Winter 2026 CPMS Days offer a series of structured, theme-based case discussions utilizing the…
September 15, 2026
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Applications open for the 2027 Open Academy x ERDERA Schools
Applications are open for the EURORDIS Open Academy x ERDERA Schools 2027: two in-person training…
World Mitochondrial Disease Awareness Month 2026
To mark World Mitochondrial Disease Awareness Month, ERN EURO-NMD is pleased to present a special…
Survey on Hypoglycemia Practices in Pediatrics – MetabERN and Endo-ERN collaboration
Survey on Hypoglycemia Practices in Pediatrics Dear Colleague, We invite you to participate in a…
ERNs paper proposing a 10-points crisis readiness plan for rare disease populations
The ERNs as a group published a position paper on crisis readiness. It proposes a…
Discover our 3 new Patient Journeys!
EURO-NMD is pleased to introduce three new Patient Journeys, dedicated to: Amyotrophic Lateral Sclerosis (ALS)…
New publication highlights the role of European Reference Networks in genetic newborn screening
A new paper published in Frontiers in Public Health explores the key role of European…
EURO-NMD renews support for the EMQN Neuromuscular Disorders EQA Scheme
EURO-NMD is pleased to announce the renewal of its agreement with the European Molecular Genetics…
Learn how to use the Clinical Patient Management System (CPMS)
Learn how to use the Clinical Patient Management System (CPMS), the secure European platform that…
Career Opportunities in Neuromuscular Medicine at The Ottawa Hospital (Canada)
The NeuroMuscular Centre at The Ottawa Hospital, affiliated with the University of Ottawa, is expanding…
Consultation: Guidelines 1/2026 on processing of personal data for scientific research purposes.
There is an ongoing consultation until 25/06/2026 regarding “Guidelines 1/2026 on processing of personal data…
Pre-registration now open for the 2026 Summer School on Multidisciplinary Management of NMDs
The ERN EURO-NMD and FILNEMUS are pleased to announce the third edition of the Summer…