New round of CPMS 2.0 workshops
Learn how to use the Clinical Patient Management System (CPMS), the secure European platform that…
April 16, 2026
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Learn how to use the Clinical Patient Management System (CPMS)
Learn how to use the Clinical Patient Management System (CPMS), the secure European platform that…
New Position Paper out: “European Reference Networks – a flagship activity of the EU in the field of rare and complex diseases: from 2017 to 2025”
The European Reference Networks (ERNs) have produced a position paper outlining their evolution since 2017,…
Mitochondrial Disorders Course of EURO-NMD Academy accredited by the EACCME®
Welcome to the EURO-NMD Academy: Where Neuromuscular Disorders Education is Revolutionized! Our cutting-edge platform, powered by…
2026 Call for Applications – Affiliated Partner within the European Reference Networks
The Board of Member States (BOMS), convened in Rome in 2025, has formally endorsed the…
EURO-NMD Neuropathology Webinar Series
EURO-NMD is pleased to announce a new Neuropathology Webinar Series. This series brings together leading…
Questionnaire for people living with ALS and their carers: Share your experience [Deadline extended!]
The ALS Care Pathway Working Group, established by the ERN EURO-NMD, is working to develop…
Joint Statement on Anaesthesia-Related Mitochondrial Pharmacogenetic Risk in Individuals with Venezuelan Maternal Ancestry
European Society of Anaesthesiology and Intensive Care (ESAIC) European Society of Paediatric Anaesthesia (ESPA) European…
Looking back at the Transition in Rare Diseases Workshop – Ghent, 27–28 February 2026
Two weeks ago, representatives from 22 European Reference Networks (ERNs) gathered in Ghent, Belgium, for the…
Case presentations during the Annual Meeting Paris Brain Institute, 29/04/2026 09:30-10:30
PROPOSE A CASE FOR DISCUSSION On the third meeting day, Wednesday, April 29th 2026, from…
Registry Performance Update: 641 patients!
EURO-NMD Registry: Growing Participation Across Europe The EURO-NMD Registry, launched to support research and improve…
ALS Webinar Series
The Motor Neuron Diseases Working Group of EURO-NMD is proud to launch a special ALS…