Press release following the rare diseases day and 1 year anniversary of ERNs
The computer networks are up and running and rare disease patients are starting to enter their data. A year after their launch, the European Reference Networks are looking ahead to what it will take t …
ERN background
Why rare diseases?
13 Jul 2017Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …
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What are ERNs?
13 Jul 2017 -
Adding value for patients and professionals
13 Jul 2017 -
How ERNs are approved?
13 Jul 2017
Recent activities
Press release following the rare diseases day and 1 year anniversary of ERNs
28 Mar 2018The computer networks are up and running and rare disease patients are starting to enter their data. A year after their launch, the European Reference …
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Position statement from the ERN Coordinators
27 Feb 2018 -
Rare Disease Day 2018!
26 Feb 2018
Upcoming events
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American Academy of Neurology Annual Meeting
21 April 2018 -
CMS Patient Day
28 April 2018 -
EPNS Training Course 2018
8 May 2018 -
Mitochondrial Medicine
9 May 2018 -
European Conference on Rare Diseases and Orphan Products
10 May 2018
View complete list of events
