ERN-EURO-NMD – European Reference Network

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RD-Connect webinars now available online

We are delighted to announce that the series of RD-Connect webinars are now available online. As part of a close working relationship between EURO-NMD and RD-Connect three informative webinars were or …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

RD-Connect webinars now available online

4 Oct 2018

We are delighted to announce that the series of RD-Connect webinars are now available online. As part of a close working relationship between EURO-NMD …

ENMC publishes report from GNE myopathy workshop
1 Oct 2018

RD-Connect announces educational webinars for ERN Stakeholders
7 Aug 2018

Upcoming events

View complete list of events

Our platforms

Clinical patient management system
13 Jul 2017
Collaborative platform
13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

RD-Connect webinars now available online

ENMC publishes report from GNE myopathy workshop

RD-Connect announces educational webinars for ERN Stakeholders

Upcoming events

143rd American Neurological Association Annual Meeting

EPNS Research Meeting

GBS/CIDP 15th Symposium

World Orphan Drug Congress Europe 2018

Action Duchenne Annual Conference

Our platforms

Clinical patient management system

Collaborative platform