ERN-EURO-NMD – European Reference Network

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Neuromuscular Summer School 2018 – Report

The first Neuromuscular Translational Summer School was devised and developed by Professor Annemieke Aartsma-Rus (LUMC, Netherlands and Newcastle University, UK), Silvere van der Maarel, (LUMC, Nether …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

Neuromuscular Summer School 2018 – Report

19 Jul 2018

The first Neuromuscular Translational Summer School was devised and developed by Professor Annemieke Aartsma-Rus (LUMC, Netherlands and Newcastle Univ …

Kate Bushby announces her retirement
24 May 2018
Share4Rare hosts co-creation workshop
22 May 2018

Upcoming events

View complete list of events

Our platforms

Clinical patient management system

13 Jul 2017

Collaborative platform

13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

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ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

Neuromuscular Summer School 2018 – Report

Kate Bushby announces her retirement

Share4Rare hosts co-creation workshop

Upcoming events

Peripheral Nerve Society Annual Meeting

From Pathways of Motor Neuron Degeneration to Interventional Strategies

Duchenne Care Conference

1st European Transition Symposium

2018 MDF Annual Conference

Our platforms

Clinical patient management system

Collaborative platform