LGMD Awareness Day – 30th September 2021
Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is intended to be an annual collaborative effort to globally raise awareness of individuals living with limb-girdle muscular dystrophy. The seventh …
Current Newsletter
ERN background
Why rare diseases?
20 Feb 2019Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …
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What are ERNs?
20 Feb 2019 -
Adding value for patients and professionals
20 Feb 2019 -
How ERNs are approved?
20 Feb 2019
Recent activities
LGMD Awareness Day – 30th September 2021
24 Sep 2021Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day is intended to be an annual collaborative effort to globally raise awareness of individuals living …
Upcoming events
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NGS results and CNV detection in Czech patients with neuromuscular disease
30 September 2021 -
NGS results and CNV detection in Czech patients with neuromuscular disease – Webinar 30 SEP 2021 4PM Paris time
30 September 2021 -
The Basics & Beyond Workshop in clinical epidemiological research for ERNs
30 September 2021 -
Clinical Research with databases: The Basics & Beyond Workshop in clinical epidemiological research for ERNs
30 September 2021 -
WCN 2021
3 October 2021
- View complete list of events -
