ERN-EURO-NMD – European Reference Network

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Kate Bushby announces her retirement

After 29 years at Newcastle University, Professor Katie Bushby MD FRCP has announced her retirement as Professor of Neuromuscular Genetics and as coordinator of our ERN from the end of May 2018. Whils …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

Kate Bushby announces her retirement

24 May 2018

After 29 years at Newcastle University, Professor Katie Bushby MD FRCP has announced her retirement as Professor of Neuromuscular Genetics and as coor …

Share4Rare hosts co-creation workshop
22 May 2018
Summer School Programme now available
24 Apr 2018

Upcoming events

View complete list of events

Our platforms

Clinical patient management system

13 Jul 2017

Collaborative platform

13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

Translational Summer School Flier 2018

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

Kate Bushby announces her retirement

Share4Rare hosts co-creation workshop

Summer School Programme now available

Upcoming events

Summer School of Myology

ENCALS meeting 2018

TRICALS workshop

UMDF Mitochondrial Medicine 2018

Parent Project Muscular Dystrophy Annual Conference

Our platforms

Clinical patient management system

Collaborative platform