ERN-EURO-NMD – European Reference Network

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EAN and EURO-NMD establishes memorandum of understanding

We are delighted to announce that our EURO-NMD has established a Memorandum of Understanding with the European Academy of Neurology. The exciting and natural synergy will help raise the profile of rar …

ERN background

Why rare diseases?

20 Feb 2019

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

EAN and EURO-NMD establishes memorandum of understanding

29 May 2019

We are delighted to announce that our EURO-NMD has established a Memorandum of Understanding with the European Academy of Neurology. The exciting and …

Meeting Report from Myology 2019
10 Apr 2019

Translational Summer School 2019
4 Apr 2019

Upcoming events

View complete list of events

Our platforms

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

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ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

EAN and EURO-NMD establishes memorandum of understanding

Meeting Report from Myology 2019

Translational Summer School 2019

Upcoming events

Mechanisms of Motor Neuron Degeneration and Therapeutic Intervention

Cure CMD Scientific and Family Conference 2019

Mitochondrial Physiology – From Organelle to Organism

National Limb Girdle Muscular Dystrophy Conference 2019

Clinical trial readiness in nemaline myopathy caused by mutations in the nebulin and actin (ACTA1) genes

Our platforms

Clinical Patient Management System (CPMS)

Collaborative Platform

CPMS Helpdesk