ERN-EURO-NMD – European Reference Network

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Meeting Report from Myology 2019

Overview Myology 2019, was the sixth edition of the international congress of myology organized by AFM-Telethon, took place in Bordeaux, France, from March 25 to 28. More than 800 researchers and scie …

ERN background

Why rare diseases?

20 Feb 2019

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

Meeting Report from Myology 2019

10 Apr 2019

Overview Myology 2019, was the sixth edition of the international congress of myology organized by AFM-Telethon, took place in Bordeaux, France, from …

Translational Summer School 2019
4 Apr 2019

Share4Rare’s new video
3 Apr 2019

Upcoming events

View complete list of events

Our platforms

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

Meeting Report from Myology 2019

Translational Summer School 2019

Share4Rare’s new video

Upcoming events

12th Edition of the International Myotonic Dystrophy Consortium Meeting (IDMC-12)

European Human Genetics Conference 2019

9th World Congress on Rare Diseases and Orphan Drugs

Summer School of Myology

FSH Society International Research Congress – 2019

Our platforms

Clinical Patient Management System (CPMS)

Collaborative Platform

CPMS Helpdesk