EURO-NMD Patient Webinar Series: Gene Therapy

…TIMESLOT: Wednesday 23 October 2024 – 16:00 – 17:00 CEST …THEME: EURO-NMD Patient Webinar Series:…

Read more

A game-changing partnership, championed by the European Union and member states

ERDERA opens a new era for rare disease research in Europe and beyond!🚀 👩🏽‍🔬​Backed by…

Read more

Videos for CPMS 2.0

Dear ERN community, In an effort to support the transition from the current CPMS to…

Read more

The diagnosis of peripheral neuropathies

Joachim Weis, Institute of Neuropathology, RWTH Aachen University Hospital, Aachen, Germany Jena-Michel Vallat, Department of…

Read more

The management of amyotrophic lateral sclerosis

In March 2024, the EAN published a new guideline on the management of amyotrophic lateral…

Read more

Save the date: EURO-NMD Annual Meeting 2025 5th-7th March in Essen, Germany

EURO-NMD Annual Meeting 2025 The time has come to start preparing the 2025 edition of…

Read more

Discover Mitocon 2024!

On behalf of Mitocon and its Scientific Program Committee, we are pleased to announce the…

Read more

New Neuromuscular Dysphagia Ukrainian Podcast: Дисфагія при нервово-м’язових захворюваннях

Дисфагія при нервово-м’язових захворюваннях Цей вебінар презентувала професор Маріанн де Віссер. Маріанн де  Віссер є…

Read more

Update on ALS approved therapies

…TIMESLOT: Thursday 10 October 2024 – 16:00 – 17:00 CEST …THEME: Update on ALS approved…

Read more

Registry Onboarding has started

Registry Onboarding has started The ERN EURO-NMD Registry Hub intends to collect data from the…

Read more

ERN EURO-NMD: "Breaking barriers and building bridges in rare Neuromuscular Diseases"

What is an European Reference Network?

To review a patient’s diagnosis and treatment, ERN coordinators convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools.

ERNs offer the potential to give patients and doctors across the EU access to the best expertise and timely exchange of life-saving knowledge,...

Read more

About EURO-NMD

EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or...

Read more

Relevant EURO-NMD resources at a distance of a click

Several essential resources support the EURO-NMD network, some supplied by the European Commission and others developed in-house. The objective is to fulfil the ERN’s goals of providing streamlined diagnostic and therapeutic features to support patient care across Europe and propel research in neuromuscular disorders.

Read more