COVID-19 Patient Survey

COVID-19 Hospital Survey

WG & Board meeting information 8-11 December 2020
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ERN background

Why rare diseases?

20 Feb 2019

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

Survey on patients organisations’ knowledge and position paper on screening for inherited neuromuscular diseases in Europe

4 Jan 2021

A new Euro-NMD publication is now available preprint on The Orphanet Journal of Rare Diseases about  European patients organisations’ knowledge and po …

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“