ERN-EURO-NMD – European Reference Network

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RD-Connect announces educational webinars for ERN Stakeholders

As part of a close working relationship between EURO-NMD and RD-Connect we are delighted to announce a series of highly relevant and informative webinars for any researchers who are involved in an ERN …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

RD-Connect announces educational webinars for ERN Stakeholders

7 Aug 2018

As part of a close working relationship between EURO-NMD and RD-Connect we are delighted to announce a series of highly relevant and informative webin …

Neuromuscular Summer School 2018 – Report
19 Jul 2018

Kate Bushby announces her retirement
24 May 2018

Upcoming events

View complete list of events

Our platforms

Clinical patient management system
13 Jul 2017
Collaborative platform
13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

RD-Connect announces educational webinars for ERN Stakeholders

Neuromuscular Summer School 2018 – Report

Kate Bushby announces her retirement

Upcoming events

ICORD (International Conferences on Rare Diseases and Orphan Drugs)

Genetic Alliance UK Annual Conference 2018

World Muscle Society Congress 2018

American Association of Neuromuscular & Electrodiagnostic Medicine

Mitochondrial Plasticity in Metabolism and Signalling

Our platforms

Clinical patient management system

Collaborative platform