EUHPP Live Webinar: “European Reference Network evaluation: the way forward”

The European Commission has published the 5-year evaluation report on ERNs & Healthcare Providers. The…

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The role of muscle biopsy in inflammatory myopathies

  …TIMESLOT: Thursday 05 December 2024 16:00 CET …THEME: The role of muscle biopsy in inflammatory…

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Together for Rare Diseases & ERICA Webinar about ERNs for Industry partners

Together For Rare Diseases with ERICA are launching a series of webinars on how to…

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CPMS 2.0 is here! Training for clinicians is available!

It is with great pleasure and appreciation for your work that we officially announce that…

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ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies

The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of…

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Gain expertise in muscle biopsy interpretation and applications in diagnosing neuromuscular disorders!

Get ready for the EURO-NMD Neuromuscular Neuropathology Webinar Series—an exciting nine-episode journey through the world…

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The management of amyotrophic lateral sclerosis

In March 2024, the EAN published a new guideline on the management of amyotrophic lateral…

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8th ERN EURO-NMD Annual Meeting in Essen!

The time has come to start preparing the 2025 edition of the in-person EURO-NMD Annual…

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Registry Onboarding has started

Registry Onboarding has started The ERN EURO-NMD Registry Hub intends to collect data from the…

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ERN EURO-NMD: "Breaking barriers and building bridges in rare Neuromuscular Diseases"

What is an European Reference Network?

To review a patient’s diagnosis and treatment, ERN coordinators convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools.

ERNs offer the potential to give patients and doctors across the EU access to the best expertise and timely exchange of life-saving knowledge,...

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About EURO-NMD

EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or...

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Relevant EURO-NMD resources at a distance of a click

Several essential resources support the EURO-NMD network, some supplied by the European Commission and others developed in-house. The objective is to fulfil the ERN’s goals of providing streamlined diagnostic and therapeutic features to support patient care across Europe and propel research in neuromuscular disorders.

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