ERN-EURO-NMD – European Reference Network

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Last chance to register for our Summer School!!

We have been delighted with the interest around this year’s summer school and for those who have already registered. We do have a few places remaining for those people still wanting to attend. The cou …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

Last chance to register for our Summer School!!

18 Jun 2018

We have been delighted with the interest around this year’s summer school and for those who have already registered. We do have a few places remaining …

Kate Bushby announces her retirement
24 May 2018
Share4Rare hosts co-creation workshop
22 May 2018

Upcoming events

View complete list of events

Our platforms

Clinical patient management system

13 Jul 2017

Collaborative platform

13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

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Translational Summer School Flier 2018

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

Last chance to register for our Summer School!!

Kate Bushby announces her retirement

Share4Rare hosts co-creation workshop

Upcoming events

TRICALS workshop

UMDF Mitochondrial Medicine 2018

Parent Project Muscular Dystrophy Annual Conference

6th Translational Research Meeting on Peripheral Neuropathies

Neuromuscular Translational Summer School

Our platforms

Clinical patient management system

Collaborative platform