05 Dec 2024
EUHPP Live Webinar: “European Reference Network evaluation: the way forward”
The European Commission has published the 5-year evaluation report on ERNs & Healthcare Providers. The…
The role of muscle biopsy in inflammatory myopathies
…TIMESLOT: Thursday 05 December 2024 16:00 CET …THEME: The role of muscle biopsy in inflammatory…
Together for Rare Diseases & ERICA Webinar about ERNs for Industry partners
Together For Rare Diseases with ERICA are launching a series of webinars on how to…
CPMS 2.0 is here! Training for clinicians is available!
It is with great pleasure and appreciation for your work that we officially announce that…
ERDERA Pre-Announces 2025 Joint Transnational Call for Proposals on Rare Disease Therapies
The European Rare Diseases Research Alliance (ERDERA) is excited to announce the upcoming launch of…
Gain expertise in muscle biopsy interpretation and applications in diagnosing neuromuscular disorders!
Get ready for the EURO-NMD Neuromuscular Neuropathology Webinar Series—an exciting nine-episode journey through the world…
The management of amyotrophic lateral sclerosis
In March 2024, the EAN published a new guideline on the management of amyotrophic lateral…
8th ERN EURO-NMD Annual Meeting in Essen!
The time has come to start preparing the 2025 edition of the in-person EURO-NMD Annual…
Registry Onboarding has started
Registry Onboarding has started The ERN EURO-NMD Registry Hub intends to collect data from the…
ERN EURO-NMD: "Breaking barriers and building bridges in rare Neuromuscular Diseases"
What is an European Reference Network?
To review a patient’s diagnosis and treatment, ERN coordinators convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools.
ERNs offer the potential to give patients and doctors across the EU access to the best expertise and timely exchange of life-saving knowledge,...
About EURO-NMD
EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or...
Relevant EURO-NMD resources at a distance of a click
Several essential resources support the EURO-NMD network, some supplied by the European Commission and others developed in-house. The objective is to fulfil the ERN’s goals of providing streamlined diagnostic and therapeutic features to support patient care across Europe and propel research in neuromuscular disorders.