19 Jun 2025
Myopathies: from care to cure
We are excited to announce a new webinar series on the Management and Treatment of…
Pain Management in Myopathies
…TIMESLOT: Thursday, 19 June 2025 16:00 CEST …MAIN TITLE: Pain Management in Myopathies …PRESENTERS: Dr. Stefanie Glaubitz…
Together on CPMS Days!
What are CPMS Days? CPMS Days are structured, theme-based case discussions hosted within the Clinical…
9th Meeting Mitochondrial Medicine – Therapeutic Development
EURO-NMD is pleased to endorse the 9th meeting in the international series on mitochondrial disease…
CPMS Workshops: a new way to learn about CPMS 2.0
We are excited to announce a series of dedicated workshops showcasing the newly released Clinical…
Save the date!
The 7th Neuromuscular Translational Training School organized by EURO-NMD and hosted by the Leiden University…
Call for NMD EQA Assessors – Apply now!
Exciting opportunity to join the EMQN Team as a Volunteer Assessor for the new Neuromuscular…
Pre-registration is now open!
We are delighted to announce the second edition of this Summer School, co-organized by…
CPMS 2.0 training for clinicians from 12th March 2025 onwards!
Dear user of the CPMS 2.0, With the migration of all data from the old…
Registry Onboarding is ongoing
Registry Onboarding is ongoing The ERN EURO-NMD Registry Hub intends to collect data from the…
ERN EURO-NMD: "Breaking barriers and building bridges in rare Neuromuscular Diseases"
What is an European Reference Network?
To review a patient’s diagnosis and treatment, ERN coordinators convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools.
ERNs offer the potential to give patients and doctors across the EU access to the best expertise and timely exchange of life-saving knowledge,...
About EURO-NMD
EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or...
Relevant resources at a distance of a click
Several essential resources support the EURO-NMD network, some supplied by the European Commission and others developed in-house. The objective is to fulfil the ERN’s goals of providing streamlined diagnostic and therapeutic features to support patient care across Europe and propel research in neuromuscular disorders.