Webinar Oct 21 4PM Paris
Oct, 21 2021 04:00 PM in Paris delivered by Gisele Bonne, Carles Hernandez-Ferrer and Katja Lohmann
Current Newsletter
ERN background
Why rare diseases?
20 Feb 2019Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …
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What are ERNs?
20 Feb 2019 -
Adding value for patients and professionals
20 Feb 2019 -
How ERNs are approved?
20 Feb 2019
Recent activities
Webinar Oct 21 4PM Paris
20 Oct 2021Oct, 21 2021 04:00 PM in Paris delivered by Gisele Bonne, Carles Hernandez-Ferrer and Katja Lohmann
Upcoming events
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Rare Diseases’ therapies integration in diagnostic support tools through the Treatabolome platform
21 October 2021 -
“Pluripotent stem cells for rare disease research: banking, data, application”: an EJPRD training course
25 October 2021 -
Educational Webinar 1 – Current research services available for the rare diseases community
8 November 2021 -
MYO-MRI Imaging in Neuromuscular Disease Conference 2021
8 November 2021 -
Translational ‘Summer’ School 2021
6 December 2021
- View complete list of events -
