ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

Share4Rare – the project to develop a new collective awareness platform for social innovation launches!

12 Feb 2018

Based on a socially innovative approach, and building on citizen science and collective intelligence, the Share4Rare Project will engage and connect a …

supported by the

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern