ERN-EURO-NMD – European Reference Network

About EURO-NMD – & ERNs
Patient – engagement
Educational – resources
Guidelines – & protocols
Research – & clinical trials
Translational – summer school
- Overview
  - Sponsoring this event
- Programme
- Apply
- - Translational Summer School Flier 2018
- Close
.
- Close
.
- Get in touch
  
  Please note: We can’t respond to individual patient cases from this form. Do not share any patient information through this email system.
  
  We will only use the information you send to us via this form to deal with your particular question. We will not add any details left here to our mailing lists and it will not be shown on our website.
  
  Once 'we' have been in touch with you we will delete your details from the system.
  
  'We' means the EURO-NMD Secretariat who are in overall charge of the website and its content.
  
  Are you happy with us storing the details below whilst we deal with your enquiry? (required)
  
  Yes, I'm happy for you to keep my data for this purpose
  
  Your name(required)
  
  Your email address(required)
  
  Subject(required)
  
  Your message(required)
  
  Are you human?(required)
  
  This field should be left blank
  
  Please wait...
- Close

Share4Rare hosts co-creation workshop

Share4Rare hosted a co-creation workshop on Friday 18th May at MDA Hallas in Athens, Greece. Content for the S4R platform was reviewed by patients and patient advocates for content and readability. Ba …

ERN background

Why rare diseases?

13 Jul 2017

Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …

Recent activities

Share4Rare hosts co-creation workshop

22 May 2018

Share4Rare hosted a co-creation workshop on Friday 18th May at MDA Hallas in Athens, Greece. Content for the S4R platform was reviewed by patients and …

Summer School Programme now available
24 Apr 2018
Press release following the rare diseases day and 1 year anniversary of ERNs
28 Mar 2018

Upcoming events

View complete list of events

Our platforms

Clinical patient management system

13 Jul 2017

Collaborative platform

13 Jul 2017

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

/* ----------------------------------------- */ /* Content Template: HeaderBanner - start */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: HeaderBanner - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Promo Banner Homepage - start */ /* ----------------------------------------- */ /** * This CSS is required for * Latest News Slider module operate * in Toolset -> Modules Library * Please don't remove */ #breaking-news-slider .bg-img-container > div { bottom: 0; position: absolute; } .breaking-news-navigation { position: absolute; right: 15px; z-index: 10; } #breaking-news-slider .bg-img-container { height: 400px; margin-bottom: 50px; } .bg-img-container { background-position: center center; background-size: cover; display: block; position: relative; } .bg-primary.glyphicon { color: #fff; padding: 17px; } .border-top, .border-bottom { margin-bottom: 0; } .nav .open > a, .nav .open > a:hover, .nav .open > a:focus, .panel-primary, .border-primary { border-color: #08c; } a.bg-primary { text-decoration: none; } .inline-block { padding: 10px; } .border-top, .border-bottom { margin-bottom: 0; } .nav .open > a, .nav .open > a:hover, .nav .open > a:focus, .panel-primary, .border-primary { border-color: #08c; } .post-info { color: #ccc; } /* ----------------------------------------- */ /* Content Template: Loop item in Promo Banner Homepage - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in ERN Background Info - start */ /* ----------------------------------------- */ h4{ font-family: 'Andika', sans-serif; line-height:1.3em; } .BIExcerpt{ line-height:1.4em; font-size:0.9em; } h5{ font-family: 'Andika', sans-serif; } .tempBIImage{ padding-top:35px; padding-left:25px; } /* ----------------------------------------- */ /* Content Template: Loop item in ERN Background Info - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in ERN Background – Posts List - start */ /* ----------------------------------------- */ h4, h5{ font-family: 'Andika', sans-serif; } /* ----------------------------------------- */ /* Content Template: Loop item in ERN Background – Posts List - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Recent Activities – Sinlge Post - start */ /* ----------------------------------------- */ h5{ font-family: 'Andika', sans-serif; } h4{ font-family: 'Andika', sans-serif; line-height:1.3em; } .RAExcerpt{ line-height:1.4em; font-size:0.9em; } /* ----------------------------------------- */ /* Content Template: Loop item in Recent Activities – Sinlge Post - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Recent Activities – Posts List - start */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Recent Activities – Posts List - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Events Sidebar - start */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Events Sidebar - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: Loop item in Platform Highlights for Sidebar - start */ /* ----------------------------------------- */ .platformListing{ min-height:60px; padding-top:5px; margin-bottom:20px; } /* ----------------------------------------- */ /* Content Template: Loop item in Platform Highlights for Sidebar - end */ /* ----------------------------------------- */ /* ----------------------------------------- */ /* Content Template: FooterContact - start */ /* ----------------------------------------- */ body, h3{ font-family: 'Andika', sans-serif; } /* ----------------------------------------- */ /* Content Template: FooterContact - end */ /* ----------------------------------------- */

Translational Summer School Flier 2018

ERN background

Why rare diseases?

What are ERNs?

Adding value for patients and professionals

How ERNs are approved?

Recent activities

Share4Rare hosts co-creation workshop

Summer School Programme now available

Press release following the rare diseases day and 1 year anniversary of ERNs

Upcoming events

8th edition of the National Conference on Mitochondrial Diseases

4th Joint Meeting Belgian-Dutch NMD Study Group & German Reference Center for NMD Diseases DGNN

XVIII Congresso Nazionale AIM

4th World Congress: Rare Diseases and Orphan Products

Expert Patient and Researcher EURORDIS Summer School 2018

Our platforms

Clinical patient management system

Collaborative platform