Webinars

EURO-NMD provide educational webinars on a monthly basis to increase the knowledge around different specialist areas related to the neuromuscular field. Each webinar lasts approximately one hour with the opportunity for viewers to ask questions on the subject area. We are also collaborating with the European Reference Network for Rare Neurological Diseases (ERN-RND) and the European Academy of Neurology (EAN). If you have a particular subject you would like to present about please contact Elisabeth Avidi-Muelle or Antonio Atalaia who will find a suitable date and time.

Feedback of the 2023 EURO-NMD webinars

Upcoming EURO-NMD Webinars


Click here to register!…TIMESLOT: Thursday 23 May 2024, 16:00 – 17:00 CEST…THEME: Genetic therapies and therapy developments for epileptic disorders…PRESENTERS: Prof....
Click here to register!…TIMESLOT: Wednesday 29 May 2024, 16:00 – 17:00 CET…THEME: Genetic therapies and therapy developments for muscular dystrophies (DMD,...
Click here to register!…TIMESLOT: Thursday 6 June 2024, 16:00 – 17:00 CEST…THEME: Health technology assessment (HTA) of genetic therapies…PRESENTERS:...
Click here to register!…TIMESLOT: Thursday 13 June 2024, 16:00 – 17:00 CET…THEME: Genetic therapies and therapy developments for ALS…PRESENTERS: Dr. Juan...
 Click here to register!…TIMESLOT: Wednesday 19 June 2024 – 16:00 – 17:00 CEST…THEME: Safety issues in gene therapies and how to...
 Click here to register!…TIMESLOT: Thursday 27 June 2024, 16:00 – 17:00 CET…THEME: Genetic therapies and therapy developments for SMA…PRESENTERS: Prof....
Delivered by Prof. Dr. Philip Van Damme (UZ Leuven, Belgium) on October 3rd 2024 at 16:00 Paris TimeThis is a...
Delivered by Prof. Dr. Andrea Calvo (AOU Torino, Italy) on October 10th 2024 at 16:00 Paris TimeThis is a EURO-NMD...
Delivered by Rachael Marsden (Oxford University Hospitals, UK) on October 17th 2024 at 16:00 Paris TimeThis is a EURO-NMD webinar...

Past EURO-NMD Webinars


Gene Therapy webinar series – Episode 4: N-of-1 to many personalized therapies

…TIMESLOT: Tuesday 14 May – 16:00 – 17:00 CEST…THEME: N-of-1 to many personalized therapies…PRESENTERS: Terry Pirovolakis, Founder of CureSPG50 and Elpida TherapeuticsTerry Pirovolakis, co-founder of CureSPG50,...

Gene Therapy webinar series – Episode 3

Delivered by Dr. Kathrin Meyer (Nationwide Children’s Hospital, Columbus, Ohio USA) & Marta Kollb-Sielecka (European Medicines Agency, The Netherlands) on Thursday 18 April 2024, 16:00 - 17:00 CESTThis webinar is...

Gene Therapy webinar series – Episode 2: Basic technologies and challenges in translation

Delivered by Prof. Dr. Hildegard Büning (Hannover Medical School, Germany) on Wednesday 10 April at 16:00 CESTThis webinar is part of a series co-organised by EURO-NMD, ERN-RND, ERN EpiCare and...

Gene Therapy webinar series – Episode 1: Overview of gene therapy developments for clinicians & Gene therapy in clinical practice


…TIMESLOT: Tuesday 2 April 2024 17:00 - 18:00 CET…THEME:  Overview of gene therapy developments for clinicians & Gene therapy in clinical practice…PRESENTERS: Dr. Francina Munell Casadesus (Hospital Universitari Vall D'Hebron,...

New suggestions for management and treatment of patients with Pompe disease

…TIMESLOT: 14 March 2024 16:00 CET…THEME:  New suggestions for management and treatment of patients with Pompe diseas…PRESENTER: Prof. Antonio Toscano (University of Messina, Italy)…BIOSKETCH: PROF. ANTONIO TOSCANO, M.D., born...

Rhabdomyolysis

 …TIMESLOT: 29 fev. 2024 16:00 CET…THEME: Rhabdomyolysis​…PRESENTER: Prof. Antonio Toscano (University of Messina, Italy)…BIOSKETCH: PROF. ANTONIO TOSCANO, M.D., born 16/12/1956 in Messina, Italy Full...

SMA genetics in the therapeutic and newborn screening era

 ...TIMESLOT: 15 feb. 2024 16:00 CET...THEME: SMA genetics in the therapeutic and newborn screening era...PRESENTER: Prof Eduardo Fidel Tizzano (Director of the Department of Clinical and Molecular Genetics at the...

Distal Myopathies

...TIMESLOT: 25 jan. 2024 16:00 CET...THEME: Distal Myopathies...PRESENTER: Prof Bjarne Udd (Director of the Tampere Neuromuscular Center, Tampere University Hospital, Finland​)...BIOSKETCH:...

Respiratory insufficiency in Neuromuscular Diseases

…TIMESLOT: 11 jan. 2024 16:00 CET…THEME: Respiratory insufficiency in Neuromuscular Diseases…PRESENTER: Dr. Maxwell Damian (Consultant Neurologist and Clinical Neurophysiologist, Intensive care expert, NHS, UK)…BIOSKETCH:Maxwell Damian...

Cognitive symptoms in myopathies

…TIMESLOT: 4 jan. 2024 16:00 CET…THEME: Cognitive Symptoms in Myopathies…PRESENTER: Dr. Jens Reimann (Department of Neurology, University Hospital Bonn, Germany)…BIOSKETCH:Dr. Jens Reimann is...

CANCELLED WEBINAR on Motor Neuron Disorders

WEBINAR CANCELLED! We apologize for the inconvenience but this webinar had to be cancelled for personal reasons affecting the speaker.  

Myopathology in Protein Aggregate Myopathies and vacuolar myopathies​

 ...TIMESLOT: 30 nov. 2023 16:00 CET...THEME: Myopathology in Protein Aggregate Myopathies and vacuolar myopathies​...PRESENTER: Dr. Montserrat Olivé Plana (Hospital Santa Creu i Sant Pau, Barcelona, Spain)...BIOSKETCH: Montse Olivé Plana –...

ERN-RND webinar: “Neuropsychological assessment in primary progressive aphasia – recommendations and pitfalls in clinical practice”

Delivered by Lize Jiskoot (Erasmus Medical Center Rotterdam, Netherlands)27 February 2024, 3 - 4 pm CET

ERN-RND webinar: “Newborn screening in leukodystrophies”

Delivered by Lucia Laugwitz ( University Hospital Tübingen, Germany)20 February 2024, 3 - 4 pm CET

ERN-RND webinar: “Huntington disease: new insights into molecular pathogenesis and therapeutic opportunities”

Delivered by Sarah Tabrizi (UCL Queen Square Institute of Neurology, London, UK)

ERN-RND Webinar: Insights into growing up in families affected by Huntington’s disease

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

ERN-RND Webinar : Diagnostic workup for genito-urinary dysfunctions in atypical parkinsonism

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

ERN-RND Webinar : Diagnostic workup and prognostic implication for sleep disorders in atypical parkinsonisms

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and...

ERN-RND Webinar : Neuro-ophthalmological presentations of rare neurometabolic diseases

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

ERN-RND Webinar : Haematopoietic Stem Cell Transplantion in Leukodystrophies

'Haematopoietic Stem Cell Transplantion in Leukodystrophies' by Jörn-Sven Kühl
Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European...

ERN-RND Webinar : Dissecting Fahr’s disease

'Dissecting Fahr's disease' by Amit Batla and Francesca MagrinelliEducational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and...

Towards precision medicine in NBIA

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

ERN-RND Webinar : Newborn screening in leukodystrophies

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

ERN-RND Webinar : Advanced therapies and clinical trials in Leukodystrophies

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

Logistical information

EURO-NMD use Zoom Webinar software to ensure the webinars run smoothly for the one hour duration. Some of the features that Zoom offer are:
  • Up to 500 live participants. Participants can use the Chat tool to exchange between them. They should use the Q&A tool to put questions to the panelist and these will be answered at the end. You as a participant will be offered the possibility of voicing your question, but if you prefer the moderator will read it loud and the panelist will answer it.
  • The panelists have Mute/Unmute options
  • The panelists are able to share their screen
  • Webinar recording is done and it will be made available online to watch on-demand both at our website https://ern-euro-nmd.eu/webinars/ and on the EURO-NMD YouTube Channel.
When performing webinars one or more members from the Coordination Team will be present to assist if there are any technical issues. There will also be the offer of a 5-10 minute session before the webinar so the presenter can learn the different controls and options and so they have adequate time to set up.

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern