Webinars

EURO-NMD provide educational webinars on a monthly basis to increase the knowledge around different specialist areas related to the neuromuscular field. Each webinar lasts approximately one hour with the opportunity for viewers to ask questions on the subject area. We are also collaborating with the European Reference Network for Rare Neurological Diseases (ERN-RND) and the European Academy of Neurology (EAN). If you have a particular subject you would like to present about please contact Elisabeth Avidi-Muelle or Antonio Atalaia who will find a suitable date and time.

Feedback of the 2023 EURO-NMD webinars

Upcoming EURO-NMD Webinars

Click here to register!…TIMESLOT: Thursday 19 September 2024 – 16:00 – 17:00 CEST…THEME: PMDs and pregnancy …PRESENTERS: Prof. Mika Martikainen (Professor...

Click here to register!…TIMESLOT: Thursday 26 September 2024 – 16:00 – 17:00 CEST…THEME: Melas and Melas-spectrum: clinical findings and therapeutic options…PRESENTERS: Prof....

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…TIMESLOT: Thursday 3 October 2024 – 16:00 – 17:00 CEST…THEME: Presentation of the new guidelines on...

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…TIMESLOT: Thursday 10 October 2024 – 16:00 – 17:00 CEST…THEME: Update on ALS approved therapies…PRESENTERS: Prof....

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…TIMESLOT: Thursday 17 October 2024 – 16:00 – 17:00 CEST…THEME: "Management of relationships and sexuality in ALS...

Click here to register!…TIMESLOT: Thursday 24 October 2024 – 16:00 – 17:00 CET…THEME: Novel treatments in hereditary neuropathies…PRESENTERS: Dr. Peric...

Click here to register!…TIMESLOT: Thursday 21 November 2024 16:00 CET…THEME: Muscle pathology of storage diseases with focus on plyglucosan and...

Therapies for inherited optic neuropathies–an update

…TIMESLOT: Thursday 12 September 2024 – 16:00 – 17:00 CEST…THEME: Therapies for inherited optic neuropathies–an update…PRESENTERS: Prof. Patrick Yu-Wai-Man (Cambridge Centre for Brain Repair,...

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Cell models and innovative therapies in mitochondrial disorders

…TIMESLOT: Thursday 5 September 2024 16:00 CEST…THEME: "Cell models and innovative therapies in mitochondrial disorders"…PRESENTERS: Prof. Valerio Carelli (University of Bologna (UNIBO) Department of Biomedical and Neuromotor Sciences)

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The ERN EURO-NMD Registry Hub Project

…TIMESLOT: Tuesday 3 sept. 2024 16:00 CEST…THEME: The ERN EURO-NMD Registry Hub Project…PRESENTERS: Nawel Lalout (Radboudumc, NL) & Dagmar Wandrei (Medical Center - University of Freiburg, DE)Nawel Lalout is Coordinator...

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Gene Therapy webinar series – Episode 12

…TIMESLOT: Tuesday 23 July 2024 – 15:00 – 16:00 CEST…THEME: Genetic therapies and therapy developments for rare movement disorders…PRESENTERS: Dr. Willeke van Roon-Mom (LUMC, The Netherlands)Willeke van Roon-Mom is a full professor...

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Gene Therapy webinar series – Episode 11

…TIMESLOT: Tuesday 02 July 2024 – 15:00 – 16:00 CEST…THEME: State of the art of clinical stage gene therapies for leukodystrophies…PRESENTERS: Dr. Caroline Sevin (Kremlin Bicêtre Hospital, France)Dr. Caroline Sevin is a...

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Gene Therapy webinar series: Episode 10 – Genetic therapies and therapy developments for SMA

…TIMESLOT: Thursday 27 June 2024, 16:00 – 17:00 CET…THEME: Genetic therapies and therapy developments for SMA…PRESENTERS: Prof. Dr. Jan Kirschner, (Medical Center – University of Freiburg, Germany)Jan Kirschner (Professor of Pediatric...

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Gene Therapy webinar series – Episode 9: Safety issues in gene therapies and how to address them

…TIMESLOT: Wednesday 19 June 2024 – 16:00 – 17:00 CEST…THEME: Safety issues in gene therapies and how to address them…PRESENTERS: Prof. Francesco Muntoni (University College of London, UK)Professor Francesco Muntoni is a...

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Gene Therapy webinar series: Episode 8 – Genetic therapies and therapy developments for ALS

…TIMESLOT: Thursday 13 June 2024, 16:00 – 17:00 CET…THEME: Genetic therapies and therapy developments for ALS…PRESENTERS: Dr. Juan Francisco Vázquez Costa (University of Valencia, Spain)Dr Vázquez Costa (https://orcid.org/0000-0002-3043-7938)...

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Gene Therapy webinar series: Episode 7 – Health technology assessment (HTA) of genetic therapies

…TIMESLOT: Thursday 6 June 2024, 16:00 – 17:00 CEST…THEME: Health technology assessment (HTA) of genetic therapies…PRESENTERS: Prof. Oriana Ciani (SDA Bocconi...

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Gene Therapy webinar series: Episode 6 – Genetic therapies and therapy developments for muscular dystrophies (DMD, LGMD)

…THEME: Genetic therapies and therapy developments for muscular dystrophies (DMD, LGMD)…PRESENTERS: Prof. Dr. Annemieke Aartsma-Rus (Leiden University Medical Center, the Netherlands)<span class="TextRun...

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Gene Therapy webinar series – Episode 5: Genetic therapies and therapy developments for epileptic disorders

…TIMESLOT: Thursday 23 May 2024, 16:00 – 17:00 CEST…THEME: Genetic therapies and therapy developments for epileptic disorders…PRESENTERS: Prof. Dimitri Kullmann (UCL Queen Square Institute of Neurology, London, UK)

Dimitri Kullmann is a...

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Gene Therapy webinar series – Episode 4: N-of-1 to many personalized therapies

…TIMESLOT: Tuesday 14 May – 16:00 – 17:00 CEST…THEME: N-of-1 to many personalized therapies…PRESENTERS: Terry Pirovolakis, Founder of CureSPG50 and Elpida TherapeuticsTerry Pirovolakis, co-founder of CureSPG50,...

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ERN-RND, Epicare and EAN webinars

ERN-RND: “Differential diagnosis aside from neuroimaging for non-Leukodystrophy white matter diseases”

11 July 2024

26.11.2024, 3-4 pm CET| ‘Differential diagnosis aside from neuroimaging for non-Leukodystrophy white matter diseases’ by Nicole Wolf, Amsterdam Leukodystrophy Center, VUMC, Netherlands. SIGN UP here

ERN-RND Webinar: “Autonomic dysfunction in movment disorders”

11 July 2024

19.11.2024, 3-4 pm CET| ‘Autonomic dysfunction in movment disorders’ by Pietro Guaraldi, Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy. SIGN UP here

ERN-RND Webinar: “DBS in Dystonia – the network perspective”

11 July 2024

14.11.2024, 4-5 pm CET| ‘DBS in Dystonia - the network perspective’ by Juho Joutsa, Turku University Hospital,Finnland. SIGN UP here

ERN-RND Webinar: “Diagnostic approach to childhood-onset chorea”

11 July 2024

05.11.2024, 3-4 pm CET| ‘Diagnostic approach to childhood-onset chorea’ by Juan Darío OrtigozaEscobar, Hospital Sant Joan de Déu, Barcelona, Spain. SIGN UP here

ERN-RND Webinar: “Clinical neurophysiology in dystonia”

11 July 2024

22.10.2024, 3-4 pm CET| ‘Neurogeriatric aspects and neurological aspects in palliative care of MSA, PSP and advanced PD’ by Martin Klietz, Hannover Medical School, Germany. SIGN UP here

ERN-RND Webinar: “The role of dopamine in the pathophysiology of the Allan-Herndon-Dudley syndrome/MCT8 deficiency”

11 July 2024

17.09.2024, 3-4 pm CET| ‘The role of dopamine in the pathophysiology of the Allan-Herndon-Dudley syndrome/MCT8 deficiency’ by Nina Wilpert, Charité, Berlin, Germany. SIGN UP here

ERN-RND Webinar: Family Experiences with Huntington’s Disease: Insights and Comparisons with other Neurological and Neuropsychiatric Disorders

11 July 2024

10.09.2024, 3-4 pm CET| ‘Family Experiences with Huntington's Disease: Insights and Comparisons with other Neurological and Neuropsychiatric Disorders’ by Siri Kjølaas, Oslo University Hospital, Centre for rare disorders, Oslo,Norway. SIGN...

ERN-RND webinar: “Neuropsychological assessment in primary progressive aphasia – recommendations and pitfalls in clinical practice”

1 February 2024

Delivered by Lize Jiskoot (Erasmus Medical Center Rotterdam, Netherlands)27 February 2024, 3 - 4 pm CET

ERN-RND webinar: “Newborn screening in leukodystrophies”

1 February 2024

Delivered by Lucia Laugwitz ( University Hospital Tübingen, Germany)20 February 2024, 3 - 4 pm CET

ERN-RND webinar: “Huntington disease: new insights into molecular pathogenesis and therapeutic opportunities”

1 February 2024

Delivered by Sarah Tabrizi (UCL Queen Square Institute of Neurology, London, UK)

ERN-RND Webinar: Insights into growing up in families affected by Huntington’s disease

20 November 2023

Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of...

ERN-RND Webinar : Diagnostic workup for genito-urinary dysfunctions in atypical parkinsonism

7 June 2023

Logistical Information

Logistical information

EURO-NMD use Zoom Webinar software to ensure the webinars run smoothly for the one hour duration. Some of the features that Zoom offer are:

Up to 500 live participants. Participants can use the Chat tool to exchange between them. They should use the Q&A tool to put questions to the panelist and these will be answered at the end. You as a participant will be offered the possibility of voicing your question, but if you prefer the moderator will read it loud and the panelist will answer it.
The panelists have Mute/Unmute options
The panelists are able to share their screen
Webinar recording is done and it will be made available online to watch on-demand both at our website https://ern-euro-nmd.eu/webinars/ and on the EURO-NMD YouTube Channel.

When performing webinars one or more members from the Coordination Team will be present to assist if there are any technical issues. There will also be the offer of a 5-10 minute session before the webinar so the presenter can learn the different controls and options and so they have adequate time to set up.

The ERNs are co-funded by the
European Union (Health Programme and CEF)

“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern“

Webinars

Upcoming EURO-NMD Webinars

Past EURO-NMD Webinars

Logistical information