ERN-RND Webinar: Data Sharing and Quality of Data
19 Jaunary 2027 | 3 – 4 pm CET Speaker: Judit Molnar Semmelweis University, Budapest, Hungary
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19 Jaunary 2027 | 3 – 4 pm CET Speaker: Judit Molnar Semmelweis University, Budapest, Hungary
17 November 2026 | 3 – 4 pm CET Speaker: Katerina Bernardi Boston Children’s Hospital, Boston, USA
03 November 2026 | 3 – 4 pm CET Speaker: Virginia Maltese, David Crosiers & Vasilios Constantinides University Hospital Würzburg, Würzburg, Germany Antwerp University Hospital,…
How is artificial intelligence (AI) being applied to rare neuromuscular disorders today? This upcoming DREAMS webinar will explore concrete applications of AI, machine learning and…
Saturday, 10 October 2026 | 08:30–13:30 CET Our partner ERN-RND is organising a scientific symposium on the role of registries in rare neurological diseases. The…
This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements,…
…TIMESLOT: Thursday 24 September 2026, 16:00 CEST …MAIN TITLE: Biomarkers in Mitochondrial Diseases: From Biological Insights To Clinical Practice …PRESENTERS: Dr. Guido Primiano, Fondazione Policlinico…
…TIMESLOT: Thursday 17 September 2026, 16:00 CEST …MAIN TITLE: Patients’ Perspectives: Activities and Unmet Needs …PRESENTERS: Dr. Manuela Lavorato (Azienda Ospedaliera Universitaria Pisana, U.O.C. Neurologia,…
…TIMESLOT: Thursday 10 September 2026, 16:00 CEST …MAIN TITLE: Anesthesia in Mitochondrial Diseases: Practical Challenges and Best Clinical Practices …PRESENTER: Dr.Costanza Lamperti, Fondazione IRCCS Istituto…
…TIMESLOT: Thursday 3 September 2026, 16:00 CEST …MAIN TITLE: A collaborative approach to reproductive options in mitochondrial disease …PRESENTERS: Catherine Feeney, Claire Jarvis, Eilis Moody, The…
The webinar is not available for replay. …TIMESLOT: Thursday 23 July 2026, 17:00 CEST …MAIN TITLE: Measuring meaning behind outcome measures in FSHD / What…
…TIMESLOT: Thursday 16 July 2026, 17:00 CEST …MAIN TITLE: From symptoms to outcomes: assessing FSHD in the modern era / Assessing disease progression in FSHD…