ERN-RND Webinar: Data Sharing and Quality of Data
19 Jaunary 2027 | 3 – 4 pm CET Speaker: Judit Molnar Semmelweis University, Budapest, Hungary
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19 Jaunary 2027 | 3 – 4 pm CET Speaker: Judit Molnar Semmelweis University, Budapest, Hungary
17 November 2026 | 3 – 4 pm CET Speaker: Katerina Bernardi Boston Children’s Hospital, Boston, USA
03 November 2026 | 3 – 4 pm CET Speaker: Virginia Maltese, David Crosiers & Vasilios Constantinides University Hospital Würzburg, Würzburg, Germany Antwerp University Hospital,…
Saturday, 10 October 2026 | 08:30–13:30 CET Our partner ERN-RND is organising a scientific symposium on the role of registries in rare neurological diseases. The…
“Friedreich Ataxia” 30 June 2026 | 3 – 4 pm CEST Zoom Registration Spaeker: Kathrin Reetz RWTH-University Hospital Aachen, Germany
“Palliative Care in Adult Patients with Neuromuscular and other Rare Neurological Disorders” 23 June 2026 | 3 – 4 pm CEST Zoom Registration Speaker: Marianne de…
16 June 2026 | 3 – 4 pm CEST Zoom Registration Spaeker: Tatiana Brémovà-Ertl Center for rare diseases, University Hospital Bern
17 March 2026 | 3 – 4 pm CET Speaker: Nicole Wolf, Amsterdam University Medical Centers, Netherlands
03 March 2026 | 3 – 4 pm CET Speaker: Maarten Nijkrake Radboud University Medical Center, Nijmegen, The Netherlands
13 January 2026 | 3 – 4 pm CET Speaker: Lotte van de Venis and Lori Renna Linton Radboud University Meidcal Center, Nijmegen, the Netherlands,…
09.12.2025, 1-2 pm CET – The Importance of Genetic Counselling in the Diagnostic of Rare Neurological Disorders delivred by Maria Judit Molnar, Semmelweis University, Budapest,…
02.12.2025, 3-4 pm CET | ‘Fluid Biomarkers in FTD’ by Domenico Plantone, AOU – University Hospital Siena, Italy. (ERN-RND)