2026 Summer School on Multidisciplinary Management of Neuromuscular Diseases
We are delighted to announce the third edition of this Summer School, co-organised by the European Reference Network for Rare Neuromuscular Diseases (ERN EURO-NMD) and…
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We are delighted to announce the third edition of this Summer School, co-organised by the European Reference Network for Rare Neuromuscular Diseases (ERN EURO-NMD) and…
Saturday, 10 October 2026 | 08:30–13:30 CET Our partner ERN-RND is organising a scientific symposium on the role of registries in rare neurological diseases. The…
…TIMESLOT: Thursday 24 September 2026, 16:00 CEST …MAIN TITLE: Biomarkers in Mitochondrial Diseases: From Biological Insights To Clinical Practice …PRESENTERS: Dr. Guido Primiano, Fondazione Policlinico…
…TIMESLOT: Thursday 17 September 2026, 16:00 CEST …MAIN TITLE: Patients’ Perspectives: Activities and Unmet Needs …PRESENTERS: Dr. Manuela Lavorato (Azienda Ospedaliera Universitaria Pisana, U.O.C. Neurologia,…
This year, the Neuromyology School is focused on improving multidisciplinary care for these conditions; therefore, the topics will be relevant to a broader range of…
…TIMESLOT: Thursday 10 September 2026, 16:00 CEST …MAIN TITLE: Anesthesia in Mitochondrial Diseases: Practical Challenges and Best Clinical Practices …PRESENTER: Dr.Costanza Lamperti, Fondazione IRCCS Istituto…
The NENS PhD Course “Mitochondrial Biology in the Nervous System: From Mechanisms to Disease”, endorsed by EURO-NMD, will take place from 7 to 11 September…
…TIMESLOT: Thursday 3 September 2026, 16:00 CEST …MAIN TITLE: A collaborative approach to reproductive options in mitochondrial disease …PRESENTERS: Catherine Feeney, Claire Jarvis, Eilis Moody, The…
The webinar is not available for replay. …TIMESLOT: Thursday 23 July 2026, 17:00 CEST …MAIN TITLE: Measuring meaning behind outcome measures in FSHD / What…
On the 17th – 18th July 2026 join us for a two‑day masterclass in collaboration with FSHD Europe/ FSHD European Trial Network, exploring the full clinical, genetic,…
…TIMESLOT: Thursday 16 July 2026, 17:00 CEST …MAIN TITLE: From symptoms to outcomes: assessing FSHD in the modern era / Assessing disease progression in FSHD…
…TIMESLOT: Thursday 02 July 2026, 16:00 CEST …MAIN TITLE: Neuromuscular Disorders and Pregnancy: An Overview and a Patient’s Experience …PRESENTERS: Dr. Kristin Ørstavik Department of Neurology,…