ERN-RND Webinar: Data Sharing and Quality of Data
19 Jaunary 2027 | 3 – 4 pm CET Speaker: Judit Molnar Semmelweis University, Budapest, Hungary
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19 Jaunary 2027 | 3 – 4 pm CET Speaker: Judit Molnar Semmelweis University, Budapest, Hungary
Rhabdomyolysis is a complex and potentially life-threatening condition, involving rapid dissolution of damaged or injured skeletal muscle. Clinical manifestations range from mild myalgia with elevated…
17 November 2026 | 3 – 4 pm CET Speaker: Katerina Bernardi Boston Children’s Hospital, Boston, USA
03 November 2026 | 3 – 4 pm CET Speaker: Virginia Maltese, David Crosiers & Vasilios Constantinides University Hospital Würzburg, Würzburg, Germany Antwerp University Hospital,…
We are delighted to announce the third edition of this Summer School, co-organised by the European Reference Network for Rare Neuromuscular Diseases (ERN EURO-NMD) and…
How is artificial intelligence (AI) being applied to rare neuromuscular disorders today? This upcoming DREAMS webinar will explore concrete applications of AI, machine learning and…
Saturday, 10 October 2026 | 08:30–13:30 CET Our partner ERN-RND is organising a scientific symposium on the role of registries in rare neurological diseases. The…
This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements,…
…TIMESLOT: Thursday 24 September 2026, 16:00 CEST …MAIN TITLE: Biomarkers in Mitochondrial Diseases: From Biological Insights To Clinical Practice …PRESENTERS: Dr. Guido Primiano, Fondazione Policlinico…
…TIMESLOT: Thursday 17 September 2026, 16:00 CEST …MAIN TITLE: Patients’ Perspectives: Activities and Unmet Needs …PRESENTERS: Dr. Manuela Lavorato (Azienda Ospedaliera Universitaria Pisana, U.O.C. Neurologia,…
This year, the Neuromyology School is focused on improving multidisciplinary care for these conditions; therefore, the topics will be relevant to a broader range of…
…TIMESLOT: Thursday 10 September 2026, 16:00 CEST …MAIN TITLE: Anesthesia in Mitochondrial Diseases: Practical Challenges and Best Clinical Practices …PRESENTER: Dr.Costanza Lamperti, Fondazione IRCCS Istituto…