…TIMESLOT: Thursday 04 February 2027, 16:00 CET
…MAIN TITLE: Relationships and Sexuality in NMDs
…PRESENTERS: Prof. Charlotte Handberg, National Rehabilitation Center for Neuromuscular Diseases (RCFM), Aarhus, Denmark
…MODERATOR: TBA
Prof. Charlotte Handberg is Professor and Head of Research at the National Rehabilitation Center for Neuromuscular Diseases (RCFM) in Aarhus, Denmark, and at the Department of Public Health, Aarhus University. RCFM is a nationally recognised, highly specialised private hospital providing lifelong rehabilitation services under the Danish National Board of Health.
With a research career in rehabilitation spanning back to 2007, Prof. Handberg has extensive experience in research, teaching, and leadership. She has authored numerous peer-reviewed publications and book chapters, supervises PhD and master’s students, and serves as principal investigator on several research projects, often conducted in collaboration with university hospitals in Denmark and internationally.
Her current research focuses on a range of neuromuscular conditions, including Duchenne muscular dystrophy (DMD), spinal muscular atrophy (SMA), myotonic dystrophy type 1 (DM1), amyotrophic lateral sclerosis (ALS), Charcot-Marie-Tooth disease (CMT), and myasthenia gravis (MG). She also leads and supervises broader research projects addressing educational choices, the use of telepresence robots to support children’s education, and living with personal assistance among people with neuromuscular diseases.
Alongside her research activities, Prof. Handberg serves as Deputy Chair of the Danish Research Network for Neurology Nurses and is a member of the European Academy of Nursing Science (EANS) and the Danish Society for Public Health. She previously served on the board of the DASYS Research Council.
Since 2023, she has been involved in the European Reference Network for Rare Neuromuscular Diseases (ERN EURO-NMD) as an alternate representative of Aarhus University Hospital. She is also a member of the European Neuromuscular Centre (ENMC) Research Committee, the ALS Netherlands Foundation, and the Danish Muscular Dystrophy Foundation.