22 November 2021

 

 

Name Institution Contact page Interview
Adriano Chiò University Hospital Città della Salute e della Scienza of Torino, Italy read more
Alejandra Pereda  Duchenne Parent Project Spain, C/ Embajadores 128 local, 28045 Madrid, Spain read more
Alessandra Ferlini University Hospital St Anna, Ferrara, Italy read more
Alexandre Méjat  AFM Téléthon, Association Française contre les Myopathies, 1, rue de l’Internationale, 91002 Evry, France read more
Andrés Nascimento Hospital Sant Juan de Déu Universidad de Barcelona, Spain read more
Anna Kostera-Pruszczyk SPCSK, Medical University of Warsaw, Department of Neurology, SPCSK Banacha 1a, Medical University of Warsaw, Poland read more
Anneke van der Kooi Academic Medical Centre, Meibergdreef 9, Amsterdam, 1107 AZ, Netherlands read more
Annelies Herman EURO-NMD secretariat read more
Annemieke Aartsma-Rus Leiden University Medical Centre (LUMC), Netherlands read more
Ans van der Ploeg Erasmus MC University Medical Center,’s-Gravendijkwal 230 Postbus 2040, Rotterdam, Zuid-Holland 3000 CA, Netherlands read more
Antonio Frederico Azienda Ospedaliera Universitaria Senese, Viale Bracci 2, Siena 53100, Italy read more
Antonio Toscano University of Messina, via Consolare Pompea, 1, Messina, Paradiso 98168, Italy read more
Baziel Van Engelen Radboud University Medical Center, Reinier Postlaan 4, 6525 EX, Nijmegen, The Netherlands read more
Bela Melegh University of Pécs, Szigeti Str. 12, Pécs, 7624 Hungary read more
Benedikt Schosser Friedrich-Baur Institut, Ludwig-Maximilians University Munich read more
Bjarne Udd Tampere University Hospital, Teiskontie 35, Tampere, Finland read more
Borut Pterlin University Medical Center Ljubljana, Zaloška cesta 7,Ljubljana 1000, Slovenia read more
Camiel Verhamme Academic Medical Centre, Meibergdreef 9, Amsterdam, 1107 AZ, Netherlands read more
Carlo Minetti Gaslini Institute, Largo Gaslini 5, Genova 16147, Italy read more
Carmen Paradas Hospital Universitario Virgen del Rocío / IBiS, Avda Manuel Siurot s/n, Sevilla, Andalucía 41013, Spain read more
Daniel Tanesse CMT-Europe, Fondation Universitaire, 11Rue D’Egmont; B-1000, Brussels, Belgium read more
David Adams Hôpital Bicêtre, Hôpitaux universitaires Paris Sud AP-HP, 78 Rue du Général Leclerc, Le Kremlin-Bicêtre, Ile-de-France 94270, France read more
David Stephenson Muscular Dystrophy UK read more
Davide Pareyson Fondazione IRCCS, Istituto Neurologico C.Besta, Via Celoria 11, Milan, Lombardia 20133, Italy read more
Diana van der Meij-Kim FSHD Europe read more
Dimitrios Athanasiou MDA Hellas, Elpidos 6, Athina 104 34, Greece read more
Elena Pegoraro Azienda Ospedaliera Padova (AOP), via Giustiniani, 2, Padova, 35128, Italy read more
Emma Del-Rey L’AMMi – Association contre les Maladies Mitochondriales, 6 impasse Jacques Prévert, 31470 Sainte Foy de Perolieres read more
Enrico Bertini Bambino Gesu’ Children’s Research Hospital IRCCS, Unit of Neuromuscular and Neurodegenerative Disorders, Laboratory of Molecular Medicine, Piazza S. Onofrio, 4, Rome, 00146, Italy read more
Eugenio Mercuri Fondazione Policlinico Universitario A. Gemelli, Largo Agostino Gemelli 8, Rome , Italy 00168 read more
Evy Rivers ALS Liga Belgium, Kapucijnenvoer 33, 3000 Leuven, Belgium read more
Fernand Pauly Centre Hospitalier de Luxembourg, 4 rue Nicolas Ernest Barble, Luxembourg, L-1210 read more
Florence Duguet APHP – GH Pitie Salpetriere read more
François Lamy  AFM Téléthon, Association Française contre les Myopathies, 1, rue de l’Internationale, 91002 Evry, France read more
Françoise Pelcot Association Française contre l’Amylose, 66 rue Saint Jacques, 13006 Marseille read more
Gabriele Siciliano Azienda Ospedaliero-Universitaria Pisana, U.O.C. Neurologia, via Roma 67- 56126 Pisa U.O.C. Neurologia, Ospedale Santa Chiara, Pisa, Toscana 56126, Italy read more
Gauthier Remiche Centre de Référence Neuromusculaire Erasme-HUDERF, route de Lennik, 808, Brussels, Belgium 1070 read more
Gerard Wellemberg MD1 Action Team read more
Gineta Liutkiene Hospital of Lithuanian University of Health Sciences Kauno Klinikos, Eiveniu, Kaunas, LT-50161, Lithuania read more
Giorgio Tasca Fondazione Policlinico Universitario A. Gemelli, Largo Agostino Gemelli 8, Rome , Italy 00168 read more
Gisèle Bonne Sorbonne University – INSERM U974 – Institute of Myologie, GH Pitié-Salpêtrière, Paris read more
Hanns Lochmuller Medical Center – University of Freiburg, Mathildenstr. 1, Freiburg, Baden-Württemberg 79106, Germany read more
Heike Pascal Assistance Public Hopitaux de Paris, GH Pitie salpitriere, 47 – 83 Boulevard de l’hopital Batiment Babinski, Paris,France read more
Henning Andersen Aarhus Universitets Hospital, Palle Juul Jensens Boulevard 99,8200 Aarhus N, Denmark read more
Inna Inashkina Latvian Biomedical Research and Study Centre, Ratsupites str 1 k1, Riga, Latvia read more
Isabela Tudorache Parent Project Romania – Association for Research and Support in Muscular Dystrophy, Aleea I Corneliu Coposu, nr. 14, Craiova, jud. Dolj cod 200341, Romania read more
Ivailo Tournev Expert Centre for Hereditary Neurologic and Metabolic Disorders – University Hospital Alexandrovska, 1 Georgi Sofiiski str. University hospital Alexandrovska, Sofia, NA 1431, Bulgaria read more
J. Andoni Urtizberea University Hospital Raymond-Poincaré APHP, 104 Boulevard Raymond Poincaré, Garches, Ile de France 92380 read more
Jackie Palace Oxford University Hospitals NHS Foundation Trust, Headley Way Headington, Oxford , Oxon OX3 9DU, United Kingdom read more
Jacques Salama AFM Téléthon, Association Française contre les Myopathies, 1, rue de l’Internationale, 91002 Evry, France read more
Jan De Bleecker University Hospital Gent, UZ Gent De Pintelaan 185, Gent, – 9000, Belgium read more
Jan Kirschner University Hospital Bonn, Sigmund-Freud-Str. 25, Bonn, North Rhine Westphalia, 53105 Germany read more
Jan Verschuuren Leiden University Medical Center, Albinusdreef 2, Leiden, 2333 ZA, Netherlands read more
Jana Haberlová Faculty Hospital Motol, V Úvalu 84, Motol, Prague, Czechia read more
Janneke Hoeijmakers Maastricht University Medical Centre+, PO Box 500, Maastricht, Limburg, 6202 AZ, Netherlands read more
Jean-Christophe Antoine University Hospital of Saint-Etienne, Hôpital Nord Service de Neurologie, Saint-Etienne, Loire 42055 Cedex, France read more
Jean-Philippe Plançon European Patient Organisation for Dysimmune and Inflammatory Neuropathies (EPODIN), 7 Rue du Centre, LE POULIGUEN 44510, France read more
Jens Schmidt Neuromuscular Center, University Medical Center Goettingen, Robert-Koch-Str. 40, Goettingen, Germany 37075 read more
Joaquim Brites APN – Portuguese Neuromuscular Association, Rua Duque de Loulé nº 20, 4000-324 Porto, Portugal read more
Josep Gamez Hospital Universitari Vall d’ Hebron, Passeig Vall de Hebron 119, Barcelona, Barcelona 08035, Spain read more
Juan J Vilchez Hospital UiP La Fe, Av. Fernando Abril Martorell, 106. Torre D, Planta 5, Valencia, Valencia 46026, Spain read more
Judit Varadine Csapo Angyalszarnyak – Hungarian Muscle Dystrophy Association, H – 1300 Badape St, PO Box 141, Hungary read more
Kristl Claeys University Hospitals Leuven, Neuromuscular Reference Centre, Department of Neurology and Department of Neuropediatrics Herestraat 49, Leuven, B- 3000, Belgium read more
Laurent Magy CHU Limoges, CHU Dupuytren 2 Avenue Martin Luther King, Limoges, Nouvelle Aquitaine 87042, France read more
Leonard van den Berg University Medical Centre Utrecht, Heidelberglaan 100, Utrecht, Utrecht 3584 CX, Netherlands read more
Liis Sabre Tartu University Hospital, 1a Puusepa Street,Tartu, 50406, Estonia read more
Luisa Politano Department of Experimental Medicine, Section of Biology, School of Medicine, University of Campania, Naples, Italy read more
Madelon Kroneman Spierziekten Nederland, Lt.gen. Van Heutszlaan 6, 3743 JN Baarn, Netherlands read more
Maggie C. Walter Friedrich-Baur-Institute, Dept. of Neurology, Ludwig-Maximilians-University of Munich, Ziemssenstr. 1, Munich, Bavaria 80336, Germany read more
Mar Tulinius Sahlgrenska Universitetssjukhuset, Queen Silvia Children’s Hospital Rondvägen 1, Gothenburg, Region Västra Götaland 41685, Sweden read more
Marguerite Friconneau AFM Téléthon, Association Française contre les Myopathies, 1, rue de l’Internationale, 91002 Evry, France read more
Maria Judit Molnar Semmelweis University, Tomo Str 25.-29., Budapest, Hungary 1083, Hungary read more
Marianne de Visser Academic Medical Centre, Meibergdreef 9, Amsterdam, 1107 AZ, Netherlands read more
Marie-Christine Ouillade AFM Téléthon, Association Française contre les Myopathies, 1 rue de l’Internationale, 91002 Evry,France read more
Marisol Montolio Duchenne Parent Project Spain, C/ Embajadores 128 local, 28045 Madrid, Spain read more
Massimo Marra CIDP Italia ONLUS read more
Matthias Baumann Institute of Human Genetics, Medical University Innsbruck, Peter-Mayr-Straße 1, Innsbruck, Tirol, Austria 6020 read more
Mencía de Lemus Belmonte FundAME, Calle Antonio Miró Valverde Nº 7 – Piso 5º G 28055, Madrid, Spain read more
Michela Onali Gli Equilibristi HIBM read more
Michelangelo Mancuso Azienda Ospedaliero-Universitaria Pisana, U.O.C. Neurologia, via Roma 67- 56126 Pisa U.O.C. Neurologia, Ospedale Santa Chiara, Pisa, Toscana 56126, Italy read more read interview
Monica Sciacco IRCCS Ca’ Granda Ospedale Maggiore Policlinico, Via F. Sforza 35, Milan, 20122 Italy read more
Nadine van de Beek Erasmus MC University Medical Center,’s-Gravendijkwal 230 Postbus 2040, Rotterdam, Zuid-Holland 3000 CA, Netherlands read more
Olivier Scheidegger Inselspital Bern University Hospital, Freiburgstrasse 18, 3010 Bern, Switzerland read more
Patricia Blomkwist-Markens Patient Representative read more
Patrizia Garzena CIDP Italia ONLUS read more
Peter Van den Bergh University Hospital St-Luc, Avenue Hippocrate 10, 1200 Woluwe-Saint-Lambert, Belgium read more
Peter-Bram t’Hoen LUMC, Einthovenweg 20, 2333 ZC, Leiden, Netherlands read more
Philippe Couratier CHU Limoges, CHU Dupuytren 2 Avenue Martin Luther King, Limoges, Nouvelle Aquitaine 87042, France read more
Philippe Kerschen Centre Hospitalier de Luxembourg, 4 rue Nicolas Ernest Barble, Luxembourg, L-1210 read more
Pieter van Doorn Erasmus MC University Medical Center,’s-Gravendijkwal 230 Postbus 2040, Rotterdam, Zuid-Holland 3000 CA, Netherlands read more
Ria Broekgaarden Spierziekten Nederland, Lt.gen. Van Heutszlaan 6, 3743 JN Baarn, Netherlands read more
Rita Horvath read more
Robert-Yves Carlier University Hospital Raymond-Poincaré APHP, 104 Boulevard Raymond Poincaré, Garches, Ile de France 92380 read more
Sabine Rudnik-Schöneborn Institute of Human Genetics, Medical University Innsbruck, Peter-Mayr-Straße 1, Innsbruck, Tirol, Austria 6020 read more
Sabrina Sacconi CHU Nice, Pasteur 2 , 30 Voie Romaine Zone C, Nice, Alpes Maritimes 06000, France read more
Sandrine Segovia-Kueny AFM Téléthon, Association Française contre les Myopathies, 1 rue de l’Internationale, 91002 Evry,France read more
Serenella Servidei Fondazione Policlinico Universitario A. Gemelli, Largo Agostino Gemelli 8, Rome , Italy 00168 read more
Shahram Attarian Centre Hospitalo-Universitaire La Timone – Assistance Publique des Hôpitaux de Marseille, 264 Rue Saint Pierre Service de Neurologie des Maladies Neuromusculaires et SLA
9eme Étage, Marseille 13005, France
read more
Stanislav Vohanka University Hospital Brno, Neuromuscular Centre, Jihlavska 20, Brno, Czech Republic 62500 read more
Susana Quijano-Roy University Hospital Raymond-Poincaré APHP, 104 Boulevard Raymond Poincaré, Garches, Ile de France 92380 read more
Tanya Stojkovic Assistance Public Hopitaux de Paris, GH Pitie Salpêtrière, 47 – 83 Boulevard de l’hopital Batiment Babinski,Paris, France read more
Thomas Sejersen Karolinska University Hospital, Karolinska Vägen 37, Stockholm, Sweden 17176 read more
Tiziana Mongini Azienda Ospedaliera Universitaria Città della Salute e della Scienza di Torino, corso Bramante 88, Torino, TO 10126, Italy read more
Ulrike Schara-Schmidt University Clinic Essen, Hufelandstraße 55, Essen, NRW 45122, Germany read more
Valeria Sansone Nemo Clinical Center, Piazza Ospedale Maggiore 3, Milano, MI 20162, Italy read more
Vincenzo Nigro University of Campania “Luigi Vanvitelli” – University Hospital “Luigi Vanvitelli”, Via Santa Maria di Costantinopoli 104, Napoli, NA 80138, Italy read more
Vincenzo Silani IRCCS Istituto Auxologico Italiano Via Ariosto no. 13, Milan, MI 20145, Italy read more
Wolfgang Löscher Institute of Human Genetics, Medical University Innsbruck, Peter-Mayr-Straße 1, Innsbruck, Tirol, Austria 6020 read more
Wolfgang Mueller-Felber Department of Pediatric Neurology, Dr. v. Hauner Children’s Hospital, Lindwurmstr. 4, Munich, Bavaria 80337, Germany read more
Yann Pereon University Hospital – CHU de Nantes, Place Alexis Ricordeau Hotel-Dieu, Nantes, – F-44903, France read more

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EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern