Peter represents Euro–DyMA, the federation of European Myotonic Dystrophy support groups. Euro–DyMA brings the point of view of the patients and families to European institutions, health professionals and drug developers. It identifies areas where care or research efforts should be intensified to harmonise knowledge in Europe. Peter is the Chair of Cure Myotonic Dystrophy UK (Cure DM), a charity that facilitates research, raises awareness and provides support to those with DM, their families and their carers. He is a member of many panels and groups in the National Health Service and other healthcare organisations and is the vice–chair of the Muscular Dystrophy UK Lay Research Panel. Peter is an Engineer and Management Consultant with over 20 years’ experience in business management systems, change management, quality systems and regulatory approvals before his son was diagnosed with congenital DM1 and his focus turned to advocacy and the voluntary sector.
