21 Nov 2024
ERN EURO-NMD: "Breaking barriers and building bridges in rare Neuromuscular Diseases"
What is an European Reference Network?
To review a patient’s diagnosis and treatment, ERN coordinators convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools.
ERNs offer the potential to give patients and doctors across the EU access to the best expertise and timely exchange of life-saving knowledge,...
About EURO-NMD
EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or...
Relevant EURO-NMD resources at a distance of a click
Several essential resources support the EURO-NMD network, some supplied by the European Commission and others developed in-house. The objective is to fulfil the ERN’s goals of providing streamlined diagnostic and therapeutic features to support patient care across Europe and propel research in neuromuscular disorders.