EURO-NMD Patient Webinar Series: Gene Therapy

…TIMESLOT: Wednesday 23 October 2024 – 16:00 – 17:00 CEST …THEME: EURO-NMD Patient Webinar Series:…

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Call for Nominations: ERDERA Multistakeholder Advisory Group

The European Rare Diseases Research Alliance (ERDERA) seeks experts to join its Multistakeholder Advisory Board…

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Videos for CPMS 2.0

Dear ERN community, In an effort to support the transition from the current CPMS to…

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The diagnosis of peripheral neuropathies

Joachim Weis, Institute of Neuropathology, RWTH Aachen University Hospital, Aachen, Germany Jena-Michel Vallat, Department of…

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The management of amyotrophic lateral sclerosis

In March 2024, the EAN published a new guideline on the management of amyotrophic lateral…

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Save the date: EURO-NMD Annual Meeting 2025 5th-7th March in Essen, Germany

EURO-NMD Annual Meeting 2025 The time has come to start preparing the 2025 edition of…

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Discover Mitocon 2024!

On behalf of Mitocon and its Scientific Program Committee, we are pleased to announce the…

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New Neuromuscular Dysphagia Ukrainian Podcast: Дисфагія при нервово-м’язових захворюваннях

Дисфагія при нервово-м’язових захворюваннях Цей вебінар презентувала професор Маріанн де Віссер. Маріанн де  Віссер є…

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Update on ALS approved therapies

…TIMESLOT: Thursday 10 October 2024 – 16:00 – 17:00 CEST …THEME: Update on ALS approved…

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Registry Onboarding has started

Registry Onboarding has started The ERN EURO-NMD Registry Hub intends to collect data from the…

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ERN EURO-NMD: "Breaking barriers and building bridges in rare Neuromuscular Diseases"

What is an European Reference Network?

To review a patient’s diagnosis and treatment, ERN coordinators convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools.

ERNs offer the potential to give patients and doctors across the EU access to the best expertise and timely exchange of life-saving knowledge,...

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About EURO-NMD

EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or...

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Relevant EURO-NMD resources at a distance of a click

Several essential resources support the EURO-NMD network, some supplied by the European Commission and others developed in-house. The objective is to fulfil the ERN’s goals of providing streamlined diagnostic and therapeutic features to support patient care across Europe and propel research in neuromuscular disorders.

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