EURO-NMD Registry opens participation to healthcare providers beyond the network!
We are pleased to announce that the EURO-NMD Registry is now open to healthcare providers…
March 16, 2026
Search criteria
Read the post
Registry Performance Update: 641 patients!
EURO-NMD Registry: Growing Participation Across Europe The EURO-NMD Registry, launched to support research and improve…
Data Entry Reimbursement Protocol
As part of the European Commission (EC) support for the functioning of the ERN registries…
Registry Hub Paper out now!
The EURO-NMD Registry paper has just been published on the Orphanet Journal of Rare Diseases.…
Registry Performance Updates and Onboarding Guidance
REGISTRY REDCAP DASHBOARD