Registry Performance Update: 641 patients!
EURO-NMD Registry: Growing Participation Across Europe The EURO-NMD Registry, launched to support research and improve…
April 30, 2025
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Data Entry Reimbursement Protocol
As part of the European Commission (EC) support for the functioning of the ERN registries…
Registry Hub Paper out now!
The EURO-NMD Registry paper has just been published on the Orphanet Journal of Rare Diseases.…
Registry Performance Updates and Onboarding Guidance
REGISTRY REDCAP DASHBOARD