Dr. Imelda de Groot Award 2026: applications now open
The Dr. Imelda de Groot Award is an incentive prize for care and innovation, initiated…
March 23, 2026
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Joint Statement on Anaesthesia-Related Mitochondrial Pharmacogenetic Risk in Individuals with Venezuelan Maternal Ancestry
European Society of Anaesthesiology and Intensive Care (ESAIC) European Society of Paediatric Anaesthesia (ESPA) European…
Looking back at the Transition in Rare Diseases Workshop – Ghent, 27–28 February 2026
Two weeks ago, representatives from 22 European Reference Networks (ERNs) gathered in Ghent, Belgium, for the…
Registry Performance Update: 641 patients!
EURO-NMD Registry: Growing Participation Across Europe The EURO-NMD Registry, launched to support research and improve…
ALS Webinar Series
The Motor Neuron Diseases Working Group of EURO-NMD is proud to launch a special ALS…
Share your experience: Transition from Paediatric to Adult Care
The European Reference Network on Neuromuscular Diseases (ERN EURO‑NMD) is conducting a Europe‑wide anonymous survey to…
Multisystem Proteinopathies: Comprehensive Clinical, Radiological, and Histological Characterization in an International Multicentric Study
The John Walton Muscular Dystrophy Research Centre (JWMDRC) has initiated a descriptive, retrospective, international multicenter…
EURO-NMD Retrospective of 2025: A year of consolidation, innovation & collaboration
2025 was an exciting and productive year for EURO-NMD. Our network continued to grow, strengthen…
EURO-NMD Webinar Series: Peripheral Nerve Diseases – Charcot-Marie-Tooth Disease (CMT)
EURO-NMD is pleased to announce its January 2026 Webinar Series dedicated to Peripheral Nerve Diseases,…
EURO-NMD Webinar Series: Management and Treatment of Myopathies
We are pleased to launch the second part of the EURO-NMD Muscle Month Webinar Series…
Why Nutritional Care Matters for People Living with Neuromuscular Diseases?
Nutrition plays a vital role in the care of individuals with neuromuscular diseases (NMDs). This…
Survey on ALS clinical practices: Help shape the future of ALS care in Europe!
The ERN EURO-NMD ALS Care Pathway Working Group is pleased to invite all ALS care…