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World Mitochondrial Disease Awareness Month 2026

To mark World Mitochondrial Disease Awareness Month, ERN EURO-NMD is pleased to present a special series of four webinars dedicated to mitochondrial diseases.

Throughout September, leading experts in the field will share their knowledge and perspectives on key topics related to the diagnosis, management and understanding of mitochondrial disorders.

The webinars will take place every Thursday at 16:00 CEST and are open to healthcare professionals, researchers, students, patient representatives and anyone interested in mitochondrial diseases.


Programme


Episode 1 – A collaborative approach to reproductive options in mitochondrial disease

Thursday, 3 September 2026 | 16:00 CEST
Speakers: Catherine Feeney, Claire Jarvis, Eilis MoodyThe Newcastle upon Tyne Hospitals NHS Foundation Trust, UK 

Replay available here!


Episode 2 – Anesthesia in Mitochondrial Diseases: Practical Challenges and Best Clinical Practices

Thursday, 10 September 2026 | 16:00 CEST
Speaker: Dr. Costanza Lamperti , Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan, Italy

Replay available here!


Episode 3 – Patients’ Perspectives: Activities and Unmet Needs

Thursday, 17 September 2026 | 16:00 CEST
Speakers: Dr. Manuela Lavorato (Azienda Ospedaliera Universitaria Pisana, U.O.C. Neurologia, Italy) & Tamara Shepherd (AFM-Téléthon, France)

Click here to register! 


Episode 4 – Biomarkers in Mitochondrial Diseases: From Biological Insights To Clinical Practice

Thursday, 24 September 2026 | 16:00 CEST
Speaker: Dr. Guido Primiano, Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome, Italy

Click here to register!


Join the series

Participation is free of charge, but registration is required.

Each webinar will include a presentation followed by a live Q&A session, giving participants the opportunity to engage directly with experts.