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Motor Neuron Diseases

The Motor Neuron Diseases WG has been divided into the two subgroups: ALS group and SMA group. The main focus and goals of both subgroups are:
A. Harmonization and optimization guidelines
B. Regular contact moments to exchange knowledge
C. Mapping and sharing education & training Programmes
To achieve these goals the ALS subgroup will make use of the existing European consortium ENCALS*. There is already a significant overlap between the lists ALS-subgroup members and ENCALS members. The non-ENCALS members will be encouraged to join this consortium. The members (HCP’s) of the SMA-subgroup will form a core group that will prepare the agenda for meetings. Both groups still have to determine the frequency and dates of the meetings.

 

Members of Motor Neuron Diseases

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Sub groups

ALS
(Chair: Vincenzo Silani)
SMA
(Chair: Jan Kirschner)