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Motor Neuron Disease

The Motor Neuron Diseases WG has been divided into the two subgroups: ALS group and SMA group. The main focus and goals of both subgroups are:
A. Harmonization and optimization guidelines
B. Regular contact moments to exchange knowledge
C. Mapping and sharing education & training Programmes
To achieve these goals the ALS subgroup will make use of the existing European consortium ENCALS*. There is already a significant overlap between the lists ALS-subgroup members and ENCALS members. The non-ENCALS members will be encouraged to join this consortium. The members (HCP’s) of the SMA-subgroup will form a core group that will prepare the agenda for meetings. Both groups still have to determine the frequency and dates of the meetings.

 

Members of Motor Neuron Disease

View group members

Sub groups

ALS
(Chair: Vincenzo Silani)
SMA
(Chair: Jan Kirschner)