Joaquim Brites

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Joaquim Brites has a 28 year-old son with Duchenne Muscular Dystrophy. Joaquim Brites has been involved with APN, a Portuguese neuromuscular association, for more than 20 years. He was a member of APN’s Board of Directors and became its President in 2012. APN focuses on direct support for neuromuscular disease patients and their families.

Joaquim Brites is also the President of the General Assembly of the Portuguese Alliance of Associations of Rare Diseases since 2012 and represents Portuguese neuromuscular patients, in several European organisations. He represents Portugal in the Rare Diseases Platform (“Plateforme Maladies Rares”) in France.

Joaquim's Network Involvement

Joaquim is involved in these different areas of the network...
Muscle Diseases

Organisation

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern