26 Mar 2026
Orthopaedic Complications
…TIMESLOT: Thursday 26 March 2026, 16:00 CET …MAIN TITLE: Orthopaedic Complications …PRESENTERS: Dr. Philip Henman…
Questionnaire for people living with ALS and their carers
The ALS Care Pathway Working Group, established by the ERN EURO-NMD, is working to develop…
New CPMS Day! #4
Fourth CPMS Day – 08 April 2026 EURO-NMD is pleased to announce the Fourth CPMS…
Propose a Case for Discussion during the Annual Meeting in Paris!
PROPOSE A CASE FOR DISCUSSION On the third meeting day, Wednesday, April 29th 2026, from…
Registry Performance Update: 641 patients!
EURO-NMD Registry: Growing Participation Across Europe The EURO-NMD Registry, launched to support research and improve…
All replays are available!
The Motor Neuron Diseases Working Group of EURO-NMD is proud to launch a special ALS…
Exciting Opportunity for HPCs: Apply for the 2026 On-Site Muscle and Nerve MRI Training
Exciting Opportunity for HPCs: Apply for the 2026 On-Site Muscle and Nerve MRI Training ERN…
Extended Deadline: 30 March 2026!
The European Reference Network on Neuromuscular Diseases (ERN EURO‑NMD) is conducting a Europe‑wide anonymous survey to…
New round of CPMS 2.0 workshops
Learn how to use the Clinical Patient Management System (CPMS), the secure European platform that…
Why Nutritional Care Matters for People Living with Neuromuscular Diseases?
Nutrition plays a vital role in the care of individuals with neuromuscular diseases (NMDs). This…
Ukranian Podcasts and Resources
The European Reference Networks have set up a support platform to help Rare Disease patients…
ERN EURO-NMD: "Breaking barriers and building bridges in rare Neuromuscular Diseases"
What is an European Reference Network?
To review a patient’s diagnosis and treatment, ERN coordinators convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools.
ERNs offer the potential to give patients and doctors across the EU access to the best expertise and timely exchange of life-saving knowledge,...
About EURO-NMD
EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or...
Relevant resources at a distance of a click
Several essential resources support the EURO-NMD network, some supplied by the European Commission and others developed in-house. The objective is to fulfil the ERN’s goals of providing streamlined diagnostic and therapeutic features to support patient care across Europe and propel research in neuromuscular disorders.