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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Board Members
Executive Committee
EURO-NMD Coordination team
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Continuous Monitoring
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
User Guide and other relevant resources
Patients
Patient Advisory Board
Overview of Patient Participation in EURO-NMD
Patient Representatives
Patient Journeys
Focusing on Improving Patient Health Outcomes: The Role of Patient Organisations
Patient tools & resources
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines-Consensus-CDST
Educational / Training School
Educational Videos
EURO-NMD endorsement of educational activities
Collaborations
European Projects
Inter-ERN Groups
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding is ongoing
Registry Onboarding Dashboard
Data Entry Reimbursement Protocol
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Vincenzo Silani
Chair
Andrea Calvo
Marcio Neves Cardoso
Philippe Corcia
Stefano Cotti Piccinelli
Eleonora Dalla Bella
Rosalía Domenech
Aude-Marie GRAPPERON
Sarah Herdewyn
Raul Juntas Morales
Jan Koch
Magdalena Kuzma-Kozakiewicz
Marta Lipowska
Albert Ludolph
Rachael Marsden
Pilar García Casanova
Monica Povedano Panades
Cristina Moglia
Endre Pál
Massimilanio Filosto
Fabrizio Rao
Peter Reilich
Ricard Rojas García
Massimo Russo
Valeria Sansone
Beate Schlotter-Weigel
Francesca Trojsi
Houda Ali
Operational member
Martin Turner
Janina Turon
Philip Van Damme
Juan F. Vázquez-Costa
Annie Verschueren
Eva Vlckova
Rocco Liguori
Gaëlle Bruneteau
Adriano Chiò
Fabrizio Leigheb
Veria Vacchiano
Emilien Bernard
Gauthier Remiche
Gianni Sorarù
Letizia Mazzini
Nilo Riva
Philippe Couratier
Raffaele Dubbioso
Stefania Corti
Zoltan Grosz
Evy Reviers
Anca Loredana Alungulese
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