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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Add a new article
Events
See all events
Add a new event
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
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< Motor Neuron Diseases Working Group
ALS
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Members of ALS
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Vincenzo Silani
Chair
Andrea Calvo
Marcio Neves Cardoso
Philippe Corcia
Stefano Cotti Piccinelli
Eleonora Dalla Bella
Rosalía Domenech
Aude-Marie GRAPPERON
Sarah Herdewyn
Raul Juntas Morales
Jan Koch
Magdalena Kuzma-Kozakiewicz
Marta Lipowska
Albert Ludolph
Rachael Marsden
Pilar García Casanova
Monica Povedano Panades
Cristina Moglia
Endre Pál
Massimilanio Filosto
Fabrizio Rao
Peter Reilich
Ricard Rojas García
Massimo Russo
Valeria Sansone
Beate Schlotter-Weigel
Francesca Trojsi
Houda Ali
Operational member
Martin Turner
Janina Turon
Philip Van Damme
Juan F. Vázquez-Costa
Annie Verschueren
Eva Vlckova
Rocco Liguori
Gaëlle Bruneteau
Adriano Chiò
Fabrizio Leigheb
Veria Vacchiano
Emilien Bernard
Gauthier Remiche
Gianni Sorarù
Letizia Mazzini
Nilo Riva
Philippe Couratier
Raffaele Dubbioso
Stefania Corti
Zoltan Grosz
Evy Reviers
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