ERN-RND Webinar: “Palliative care for leukodystrophies and other rare neurological diseases (pediatric focus)”
17 March 2026 | 3 – 4 pm CET Zoom Registration Speaker: Nicole Wolf, Amsterdam University Medical Centers, Netherlands
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17 March 2026 | 3 – 4 pm CET Zoom Registration Speaker: Nicole Wolf, Amsterdam University Medical Centers, Netherlands
03 March 2026 | 3 – 4 pm CET Zoom Registration Speaker: Maarten Nijkrake Radboud University Medical Center, Nijmegen, The Netherlands
…TIMESLOT: Thursday 26 February 2026, 16:00 CET …MAIN TITLE: Newborn Screening and Impact on Rare Diseases …PRESENTERS: Prof. Jim Bonham (President of the International Society of…
…TIMESLOT: Thursday 19 February 2026, 16:00 CET …MAIN TITLE: Genetics of Amyotrophic Lateral Sclerosis and Impact on New Therapies …PRESENTERS: Dr. Marcella Neri (University Hospital St…
…TIMESLOT: Thursday, 12 February 2026, 16:00 CET …MAIN TITLE: CPMS Use and Value for Genetic Case Discussions …PRESENTERS: Dr. Fernanda Fortunato (University Hospital St Anna, Ferrara,…
…TIMESLOT: Thursday, 5 February 2026, 16:00 CET …MAIN TITLE: ERDERA Diagnostic Research Workstream …PRESENTERS: Dr. Ana Topf, (Newcastle University, UK) Ana Topf is a Senior…
…TIMESLOT: Thursday 29 January 2026, 16:00 CET …MAIN TITLE: Current Progress in Charcot-Marie-Tooth disease (CMT) Treatments …PRESENTERS: Prof. Kleopas Kleopa (Cyprus Institute of Neurology and Genetics…
…TIMESLOT: Thursday 22 January 2026, 17:00 CET …MAIN TITLE: Bioarkers and outcome measures for clinical trial readiness in CMT …PRESENTERS: Prof. Mary Reilly (University College London,…
…TIMESLOT: Thursday 15 January 2026, 16:00 CET …MAIN TITLE: Progress in Genetic Diagnosis for Neuropathies …PRESENTERS: Dr. Andrea Cortese (University College London, Department of Neuromuscular Diseases,…
13 January 2026 | 3 – 4 pm CET Speaker: Lotte van de Venis and Lori Renna Linton Radboud University Meidcal Center, Nijmegen, the Netherlands,…
…TIMESLOT: Thursday 08 January 2026, 16:00 CET …MAIN TITLE: Challenges in the diagnosis and treatment of inherited neuropathies …PRESENTERS: Dr. Davide Pareyson (Fondazione IRCCS Istituto Neurologico…
…TIMESLOT: Thursday 18 December 2025, 16:00 CET …MAIN TITLE: Update on Diagnostic Imaging in Neuromuscular Diseases …PRESENTERS: Prof. Giorgio Tasca (John Walton Muscular Dystrophy Research Centre,…