Webinars

Delievred by Alessandra Fanciulli and Pietro Guaraldi, Medical University Innsbruck, Austria & IRCCS – Institute of Neurological Sciences of Bologna, Italy on 11 November 2025,…

ERN-RND Annual Meeting Care-RND25 – symposium European healthcare for RND patients on October 28, 2025 starting at 08:00 CET Different speakers TBA

Delivered by Petya Mihaylova and Mary Kearney, Irish Consortium: Tallaght University Hospital and Children’s Health Ireland & FARA Ireland on 23 September 2025, 3 -…

Delivered by Renate Wahl, University Hospital Aachen, Germany on 16 September 2025, 4 – 5 pm CEST.

  …TIMESLOT: Wednesday, 28 May 2025 16:00 CEST …MAIN TITLE: Clinical Trial Readiness …PRESENTERS: Dr. Nicol Voermans & Ria de Haas, PhD (Radboud University Nijmegen Medical Centre,…

…TIMESLOT: Thursday, 22 May 2025 16:00 CEST …MAIN TITLE: Pediatric FSHD …PRESENTERS: Prof. Tracey Willis (Robert Jones and Agnes Hunt Orthopaedic and District Hospital NHS Trust, UK)…

Recent Advances in Clinical Trials in Multiple System Atroph delivred by David Bendetowicz – Tuesday 20th May 2025 at 15:00 CET  

Delivered by David Bendetowicz, CHU – Reference Center for Rare Multiple System Atrophy, University Hospital Bordeaux, France

…TIMESLOT: Thursday, 15 May 2025 16:00 CEST …MAIN TITLE: International Clinical Care Guidelines …PRESENTERS: Dr. Teresinha Evangelista (Institute of Myology & Pitié Salpêtrière Hospital – AP-HP, Paris,…

13.05.2025, 3-4 pm CEST | ‘Neurogeriatric Aspects in Rare Forms of Ataxia annd HSP: Later on Clinical Manifestations and Secondary Symptoms’ by Eleni Zamba-Papanicolaou, Cyprus Institute of Neurology and Genetics,…

…TIMESLOT: Thursday, 08 May 2025 16:00 CEST …MAIN TITLE: Genetic Diagnosis …PRESENTERS: Prof. Emiliano Giardina (University of Rome Tor Vergata, Italy) Professor Emiliano Giardina, PhD — Associate Professor…

Delivered by Jean-Marc Burgunder, University of Bern, Switzerland, Neurology Clinic