…TIMESLOT: Thursday 23 July 2026, 17:00 CEST
…MAIN TITLE: Measuring meaning behind outcome measures in FSHD / What outcome measures used in FSHD clinical trials : what you need to know ?
…PRESENTERS: Dr. Jose Manuel Sanz Mengibar University College London, UK & Dr. Channa Hewamadduma Sheffield Teaching Hospitals NHS Foundation Trust, UK
…MODERATOR: Dr Enrico Bugiardini University College London, UK
Dr. Jose Manuel Sanz Mengibar is a physiotherapist combining academic research with clinical practice, drawing on his own experience as a former elite-level gymnast. He has worked with both the general population and athletes, with a particular focus on children and adults with neurological disorders. His expertise lies in neurological physiotherapy, while his research focuses on ontogenetic postural development, motor neuroscience, postural control, and the continuum from limited to high motor function.
Dr. Channa Hewamadduma is a Consultant Neuromuscular Neurologist and Honorary Senior Lecturer at University of Sheffield and Sheffield Teaching Hospitals NHS Foundation Trust, UK, where he leads one of the UK’s foremost neuromuscular services, recognised as a centre of clinical and research excellence by Muscular Dystrophy UK. He is internationally recognised for his work across inherited and acquired neuromuscular disorders, with particular expertise in spinal muscular atrophy (SMA), myasthenia gravis, muscular dystrophies, and inflammatory neuropathies such as CIDP and Multifocal Motor Neuropathy.