…TIMESLOT: Thursday 16 July 2026, 17:00 CEST
…MAIN TITLE: From symptoms to outcomes: assessing FSHD in the modern era / Assessing disease progression in FSHD
…PRESENTERS: Dr. Nicolas Dubuisson University Hospitals Saint-Luc, Brussels, Belgium & Dr. Robert Muní Lofra John Walton Muscular Dystrophy Research Centre, Newcastle University, UK
…MODERATOR: Dr Enrico Bugiardini University College London, UK
Dr. Nicolas Dubuisson completed his residency in neurology at Université Catholique de Louvain in Belgium from 2013 to 2019. During the last two years of his residency, he undertook a clinical fellowship at the Neuromuscular Reference Centre of the University Hospital Saint-Luc in Brussels.
In 2019, he received an EAN (European Academy of Neurology) clinical fellowship, allowing him to gain significant expertise in inflammatory neuropathies and nerve sonography under the supervision of Dr. Goedee at Universitair Medisch Centrum (UMC) in Utrecht, The Netherlands.
Since October 2019, he has been a permanent staff member of the Neuromuscular Reference Centre at the University Hospital Saint-Luc (CUSL) in Brussels.
Concurrently, he completed a four-year thesis on Duchenne muscular dystrophy from 2019 to 2024. He is currently pursuing postdoctoral research at Oxford University in the UK, focusing on inflammatory neuropathies.
Dr. Robert Muní-Lofra is a Consultant Physiotherapist and Honorary Clinical Senior Lecturer at the Translational and Clinical Research Institute at Newcastle University.
Robert is also the Physiotherapy Team Lead at the John Walton Muscular Dystrophy Research Centre (JWMDRC), Translational and Clinical Research Institute, Newcastle University and Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK. Robert has been working with ATOM since 2016. Robert has more than 20 years’ experience providing care supporting clinical trials.
Since the finalisation of his PhD in 2022, Robert’s research focuses on assessment of disease progression and identifying care needs of neuromuscular patients. Robert also has a particular interest in the development of new outcome measures and wearable devices.