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About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Board Members
Executive Committee
EURO-NMD Coordination team
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
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Who’s who in EURO-NMD
Continuous Monitoring
Cross-Border Healthcare Directive
#ERNcare4Ua – Solidarity with Ukraine
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How to Reference our Network in your Publications?
User Guide and other relevant resources
Patients
Patient Advisory Board
Overview of Patient Participation in EURO-NMD
Patient Representatives
Patient Journeys
Focusing on Improving Patient Health Outcomes: The Role of Patient Organisations
Patient tools & resources
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
CPMS days
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EURO-NMD Academy (Moodle)
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Guidelines-Consensus-CDST
Educational / Training School
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Registry
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Performance Updates and Onboarding Guidance
Registry Onboarding Dashboard
Data Entry Reimbursement Protocol
Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Board Members
Executive Committee
EURO-NMD Coordination team
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Continuous Monitoring
Cross-Border Healthcare Directive
#ERNcare4Ua – Solidarity with Ukraine
Add or update website information
How to Reference our Network in your Publications?
User Guide and other relevant resources
Patients
Patient Advisory Board
Overview of Patient Participation in EURO-NMD
Patient Representatives
Patient Journeys
Focusing on Improving Patient Health Outcomes: The Role of Patient Organisations
Patient tools & resources
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
CPMS days
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines-Consensus-CDST
Educational / Training School
Educational Videos
EURO-NMD endorsement of educational activities
Collaborations
European Projects
Inter-ERN Groups
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Performance Updates and Onboarding Guidance
Registry Onboarding Dashboard
Data Entry Reimbursement Protocol
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Education
Education
Members of Education
View group members
Carlos Ortez
Chiara Briani
Damjan Osredkar
Endre Pál
Ferenc Kover
Floriane Manzano
Francesco Muntoni
Francina Munell
Gabriele Siciliano
Gauthier Remiche
Giacomo Comi
Giuseppe Vita
Gunnar Buyse
Heike Koelbel
Jennifer Carli
Jordi Diaz-Manera
Kinga Hadzsiev
Lenka Jurikova
Liesbeth De Waele
Malgorzata Gawel
Maria Salvado
Marta Lipowska
Mary Quirke
Massimilanio Filosto
Mattia Marchesi
Maurizio Moggio
Michela Onali
Michelangelo Mancuso
Monica Sciacco
Nathalie Goemans
Nicolas Deconinck
Nicolas Mavroudakis
Norbert Kovacs
Olimpia Musumeci
Nuria Muelas Gomez
Paolo Girlanda
Piotr Szczudlik
Samuel Komoly
Sandra Coppens
Sergio Esposito
Stefania Corti
Stefano Cotti Piccinelli
Teodora Chamova
Tiziana Enrica Mongini
Viktor Molnar
Wolfgang Müller-Felber
Yann Pereon
Zoltan Pfund
Alejandra Perez del Real
Anna Mazzeo
Anna Potulska-Chromik
Antonio Toscano
Bela Melegh
Bruno Vandevelde
Cecilia Jimenez Mallebrera
Giuseppe di Iorio
Stanislav Vohanka
Ulrike Schara-Schmidt
Isabela Tudorache
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