Isabela Tudorache

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Isabela Tudorache has more than 15 years of experience in social support activities for disadvantaged groups, in collaboration with government and non-government organizations.

Her work included: delivering strategies of social inclusion for various vulnerable groups, combating human trafficking, child abandonment prevention, counselling and also implementing EU-funded projects and programs to address poverty and the disability in the region. In March 2004, together with another Duchenne parent, she founded Parent Project Romania – Association for Research and Support in Muscular Dystrophy, and, in time, she received membership of UPPMD, the TREAT-NMD Global Database Oversight Committee, and ANBRaRo – the nation organization of rare diseases.

Her current role is to establish partnerships between stakeholders in order to improve the life expectancy and the quality of life for all affected by DMD in Romania, to provide advocacy for research and implementation of international standards of care for DMD/DMB and other NMD’s in Romania.

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“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
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