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About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
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Working Groups
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Who’s who in EURO-NMD
Cross-Border Healthcare Directive
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Patient
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Overview of Patient Participation in EURO-NMD
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Clinical Patient Management System (CPMS)
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EURO-NMD Academy (Moodle)
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Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Add a new article
Events
See all events
Add a new event
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
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Education
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Education
Members of Education
View group members
Carlos Ortez
Chiara Briani
Damjan Osredkar
Endre Pál
Ferenc Kover
Floriane Manzano
Francesco Muntoni
Francina Munell
Gabriele Siciliano
Gauthier Remiche
Giacomo Comi
Giuseppe Vita
Gunnar Buyse
Heike Koelbel
Jennifer Carli
Jordi Diaz-Manera
Kinga Hadzsiev
Lenka Jurikova
Liesbeth De Waele
Malgorzata Gawel
Maria Salvado
Marta Lipowska
Mary Quirke
Massimilanio Filosto
Mattia Marchesi
Maurizio Moggio
Michela Onali
Michelangelo Mancuso
Monica Sciacco
Nathalie Goemans
Nicolas Deconinck
Nicolas Mavroudakis
Norbert Kovacs
Olimpia Musumeci
Nuria Muelas Gomez
Paolo Girlanda
Piotr Szczudlik
Samuel Komoly
Sandra Coppens
Sergio Esposito
Stefania Corti
Stefano Cotti Piccinelli
Teodora Chamova
Tiziana Mongini
Viktor Molnar
Wolfgang Müller-Felber
Yann Pereon
Zoltan Pfund
Alejandra Perez del Real
Anna Mazzeo
Anna Potulska-Chromik
Antonio Toscano
Bela Melegh
Bobby Ancil
Bruno Vandevelde
Cecilia Jimenez Mallebrera
Giuseppe di Iorio
Stanislav Vohanka
Ulrike Schara-Schmidt
Isabela Tudorache
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