Presentation of the new guidelines on ALS management
…TIMESLOT: Thursday 3 October 2024 – 16:00 – 17:00 CEST …THEME: Presentation of the new guidelines on ALS management …PRESENTERS: Prof. Dr. Philip Van Damme (UZ…
26 Sep 2024
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2024 - Sep
MELAS and MELAS-spectrum: clinical findings and therapeutic options
…TIMESLOT: Thursday 26 September 2024 – 16:00 – 17:00 CEST …THEME: Melas and Melas-spectrum: clinical findings and therapeutic options …PRESENTERS: Prof. Serenella Servidei (Fondazione Policlinico Universitario Agostino Gemelli…
PMDs and pregnancy
…TIMESLOT: Thursday 19 September 2024 – 16:00 – 17:00 CEST …THEME: PMDs and pregnancy …PRESENTERS: Prof. Mika Martikainen (Professor of Neurology, University of Oulu and Chief…
ERN-RND Webinar: “The role of dopamine in the pathophysiology of the Allan-Herndon-Dudley syndrome/MCT8 deficiency”
17.09.2024, 3-4 pm CET| ‘The role of dopamine in the pathophysiology of the Allan-Herndon-Dudley syndrome/MCT8 deficiency’ by Nina Wilpert, Charité, Berlin, Germany. SIGN UP here
Therapies for inherited optic neuropathies–an update
…TIMESLOT: Thursday 12 September 2024 – 16:00 – 17:00 CEST …THEME: Therapies for inherited optic neuropathies–an update …PRESENTERS: Prof. Patrick Yu-Wai-Man (Cambridge Centre for Brain Repair, Department…
ERN-RND Webinar: Family Experiences with Huntington’s Disease: Insights and Comparisons with other Neurological and Neuropsychiatric Disorders
10.09.2024, 3-4 pm CET| ‘Family Experiences with Huntington’s Disease: Insights and Comparisons with other Neurological and Neuropsychiatric Disorders’ by Siri Kjølaas, Oslo University Hospital, Centre…
World Duchenne Awareness Day 2024
The World Duchenne Awareness Day 2024 theme is ‘Raise your voice for Duchenne’. World Duchenne Awareness Day (WDAD) is an annual event held on September…
Cell models and innovative therapies in mitochondrial disorders
…TIMESLOT: Friday 5 September 2024 16:00 CET …THEME: “Cell models and innovative therapies in mitochondrial disorders” …PRESENTERS: Prof. Valerio Carelli (University of Bologna (UNIBO) Department…
The ERN EURO-NMD Registry Hub Project
…TIMESLOT: Tuesday 3 sept. 2024 16:00 CEST …THEME: The ERN EURO-NMD Registry Hub Project …PRESENTERS: Nawel Lalout (Radboudumc, NL) & Dagmar Wandrei (Medical Center -…
2024 - Jul
Gene Therapy webinar series – Episode 12
Click here to register! …TIMESLOT: Tuesday 23 July 2024 – 15:00 – 16:00 CEST …THEME: Genetic therapies and therapy developments for rare movement disorders …PRESENTERS: Dr.…
Gene Therapy webinar series – Episode 11
…TIMESLOT: Tuesday 02 July 2024 – 15:00 – 16:00 CEST …THEME: State of the art of clinical stage gene therapies for leukodystrophies …PRESENTERS: Dr. Caroline Sevin (Kremlin…
2024 - Jun
Gene Therapy webinar series: Episode 10 – Genetic therapies and therapy developments for SMA
…TIMESLOT: Thursday 27 June 2024, 16:00 – 17:00 CET …THEME: Genetic therapies and therapy developments for SMA …PRESENTERS: Prof. Dr. Jan Kirschner, (Medical Center – University…