ERN-RND Scientific Symposium “Registries for RND”
Saturday, 10 October 2026 | 08:30–13:30 CET Our partner ERN-RND is organising a scientific symposium on the role of registries in rare neurological diseases. The…
23 Jul 2026
Online
This page aims to provide a comprehensive listing of meetings and events relevant to the neuromuscular field. If you wish to notify us of an event that should be included in our listing, please on this button below.
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2026 - Oct
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2026 - Jul
Measuring meaning behind outcome measures in FSHD / What outcome measures used in FSHD clinical trials : what you need to know ?
…TIMESLOT: Thursday 23 July 2026, 17:00 CEST …MAIN TITLE: Measuring meaning behind outcome measures in FSHD / What outcome measures used in FSHD clinical trials :…
Past events
From symptoms to outcomes: assessing FSHD in the modern era / Assessing disease progression in FSHD
…TIMESLOT: Thursday 16 July 2026, 17:00 CEST …MAIN TITLE: From symptoms to outcomes: assessing FSHD in the modern era / Assessing disease progression in FSHD…
Neuromuscular Disorders and Pregnancy: An Overview and a Patient’s Experience
…TIMESLOT: Thursday 02 July 2026, 16:00 CEST …MAIN TITLE: Neuromuscular Disorders and Pregnancy: An Overview and a Patient’s Experience …PRESENTERS: Dr. Kristin Ørstavik Department of Neurology,…
2026 - Jun
ERN RND webinar :”Friedreich Ataxia”
“Friedreich Ataxia” 30 June 2026 | 3 – 4 pm CEST Zoom Registration Spaeker: Kathrin Reetz RWTH-University Hospital Aachen, Germany
EURORDIS Patient Partnership Webinar Series Transition in Healthcare: Turning recommendations into practice
A webinar series highlighting how ERN recommendations on transition from adult to paediatric care are being translated into wide practice, with a focus on patient…
ERN RND webinar :”Palliative Care in Adult Patients with Neuromuscular and other Rare Neurological Disorders”
“Palliative Care in Adult Patients with Neuromuscular and other Rare Neurological Disorders” 23 June 2026 | 3 – 4 pm CEST Zoom Registration Speaker: Marianne de…
Skin biopsy for small fibers neuropathy
Neuropathology webinar series episode 8: …TIMESLOT: Thursday 18 June 2026, 16:00 CEST …MAIN TITLE: Skin biopsy for small fibers neuropathy …PRESENTERS: Prof. Grazia Devigili (IRCCS…
Neuro-ophthalmological presentations of rare neurometabolic diseases
16 June 2026 | 3 – 4 pm CEST Zoom Registration Spaeker: Tatiana Brémovà-Ertl Center for rare diseases, University Hospital Bern
Amyloid neuropathies/therapeutic approaches
Neuropathology webinar series episode 7: …TIMESLOT: Thursday 11 June 2026, 16:00 CEST …MAIN TITLE: Amyloid neuropathies/therapeutic approaches …PRESENTERS: Prof. Andoni Echaniz-Laguna (Université Paris-Saclay – Assistance…
Be Part of the 2nd World COL6 Myopathy Day – 6 June 2026
World COL6 Myopathy Day 2026 We are pleased to invite you to take part in the 2nd World COL6 Myopathy Day, which will be held…
Nerve pathology in Neuropathy Models
Neuropathology webinar series episode 6: …TIMESLOT: Thursday 04 June 2026, 16:00 CEST …MAIN TITLE: Nerve pathology in Neuropathy Models …PRESENTERS: Prof. Kleopas Kleopa (Cyprus Institute…