30 Oct 2025
Nutrition in Myopathies, Including Supplements
…TIMESLOT: Thursday 30 October 2025 16:00 CEST …MAIN TITLE: Nutrition in Myopathies, Including Supplements …PRESENTERS: Marianne Nordstrøm,…
Save the date: ECRD 2026 – Prague
Theme: “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet…
9th ERN EURO-NMD Annual Meeting in Paris!
The ERN EURO-NMD Coordination Team is pleased to announce that the 9th ERN EURO-NMD Annual…
Level up your CPMS use!
Boost collaboration, Improve patient care, Master CPMS. Join our upcoming online training sessions and learn…
The Muscle Month continues: 4 new episodes coming this October!
We are pleased to launch the second part of the EURO-NMD Muscle Month Webinar Series…
ATTRv Neuropathy Treatments: From Molecular Innovation to Multistakeholder Access
WORKSHOP AIM and OBJECTIVES This EURO-NMD Workshop aims to bring together key stakeholders to improve…
Replays Available Now!
EURO-NMD is pleased to announce the 2025 edition of its Mitochondrial Month Webinar Series, which…
Why Nutritional Care Matters for People Living with Neuromuscular Diseases?
Nutrition plays a vital role in the care of individuals with neuromuscular diseases (NMDs). This…
9th Meeting Mitochondrial Medicine – Therapeutic Development
EURO-NMD is pleased to endorse the 9th meeting in the international series on mitochondrial disease…
Ukranian Podcasts and Resources
The European Reference Networks have set up a support platform to help Rare Disease patients…
ERN EURO-NMD: "Breaking barriers and building bridges in rare Neuromuscular Diseases"
What is an European Reference Network?
To review a patient’s diagnosis and treatment, ERN coordinators convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools.
ERNs offer the potential to give patients and doctors across the EU access to the best expertise and timely exchange of life-saving knowledge,...
About EURO-NMD
EURO-NMD is a European Reference Network for the thematic grouping of rare neuromuscular diseases (NMDs), a broad group of related disorders that represent a major cause of mortality and lifelong disability in children and adults. NMDs are caused by acquired or genetic defects of motorneurons, peripheral nerves, neuromuscular junctions or...
Relevant resources at a distance of a click
Several essential resources support the EURO-NMD network, some supplied by the European Commission and others developed in-house. The objective is to fulfil the ERN’s goals of providing streamlined diagnostic and therapeutic features to support patient care across Europe and propel research in neuromuscular disorders.