A new Euro-NMD publication is now available preprint on The Orphanet Journal of Rare Diseases about European patients organisations’ knowledge and position paper on screening for inherited neuromuscu …
Between 5 000 and 8 000 rare diseases affect the daily lives of around 30 million people in the EU. For example, in the field of oncology alone, there …
A new Euro-NMD publication is now available preprint on The Orphanet Journal of Rare Diseases about European patients organisations’ knowledge and po …