ProDGNE International Meeting on GNE Myopathy 2024
The ProDGNE team is thrilled to meet you soon in the beautiful capital of Sardinia, Cagliari! On the third and final year of the EJP…
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The ProDGNE team is thrilled to meet you soon in the beautiful capital of Sardinia, Cagliari! On the third and final year of the EJP…
For the fifth time, the Joint Meeting of the Belgian-Dutch Neuromuscular Study Club and the Reference Center for Neuromuscular Diseases of the DGNN takes place…
Delivered by Dr. Kathrin Meyer (Nationwide Children’s Hospital, Columbus, Ohio USA) & Marta Kollb-Sielecka (European Medicines Agency, The Netherlands) on Thursday 18 April 2024, 16:00…
ERN-RND is happy to announce that they are organising a Spring School “DBS in Dystonia” on 17-19 April 2024, which will be held online. …
Delivered by Prof. Dr. Hildegard Büning (Hannover Medical School, Germany) on Wednesday 10 April at 16:00 CEST This webinar is part of a series co-organised…
The 2024 edition of the International Myotonic Dystrophy Consortium Meeting (IDMC-14) will be held in Nijmegen from 9-13 April 2024. #Nijmegen is the oldest city in the Netherlands and…
…TIMESLOT: Tuesday 2 April 2024 17:00 – 18:00 CET …THEME: Overview of gene therapy developments for clinicians & Gene therapy in clinical practice …PRESENTERS: Dr. Francina…
This online info session is open to all researchers and innovators at any career stage and from any field of research, especially young researchers. The…
We are pleased to announce the 8th in our series of meetings on mitochondrial disorders and the search for novel effective therapies. Mitochondrial disorders have…
SMA Europe takes great pride in inviting scientists and young researchers as well as clinicians and other healthcare professionals from all over the world to…
…TIMESLOT: 14 March 2024 16:00 CET …THEME: New suggestions for management and treatment of patients with Pompe diseas …PRESENTER: Prof. Antonio Toscano (University of Messina,…
As part of the training activities proposed by EJP RD, an 3-day training course on “Training on strategies to foster solutions of undiagnosed rare disease cases” is being organised by…