ERN-RND Scientific Symposium “Registries for RND”
Saturday, 10 October 2026 | 08:30–13:30 CET Our partner ERN-RND is organising a scientific symposium on the role of registries in rare neurological diseases. The…
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Saturday, 10 October 2026 | 08:30–13:30 CET Our partner ERN-RND is organising a scientific symposium on the role of registries in rare neurological diseases. The…
This ERDERA webinar will explore the rules and guidance that should be followed to ensure advanced therapy medicinal product (ATMP) research complies with regulatory requirements,…
…TIMESLOT: Thursday 24 September 2026, 16:00 CEST …MAIN TITLE: Biomarkers in Mitochondrial Diseases: From Biological Insights To Clinical Practice …PRESENTERS: Dr. Guido Primiano, Fondazione Policlinico…
…TIMESLOT: Thursday 17 September 2026, 16:00 CEST …MAIN TITLE: Patients’ Perspectives: Activities and Unmet Needs …PRESENTERS: Dr. Manuela Lavorato (Azienda Ospedaliera Universitaria Pisana, U.O.C. Neurologia,…
This year, the Neuromyology School is focused on improving multidisciplinary care for these conditions; therefore, the topics will be relevant to a broader range of…
…TIMESLOT: Thursday 10 September 2026, 16:00 CEST …MAIN TITLE: Anesthesia in Mitochondrial Diseases: Practical Challenges and Best Clinical Practices …PRESENTER: Dr.Costanza Lamperti, Fondazione IRCCS Istituto…
The NENS PhD Course “Mitochondrial Biology in the Nervous System: From Mechanisms to Disease”, endorsed by EURO-NMD, will take place from 7 to 11 September…
…TIMESLOT: Thursday 3 September 2026, 16:00 CEST …MAIN TITLE: A collaborative approach to reproductive options in mitochondrial disease …PRESENTERS: Catherine Feeney, Claire Jarvis, Eilis Moody, The…
The webinar is not available for replay. …TIMESLOT: Thursday 23 July 2026, 17:00 CEST …MAIN TITLE: Measuring meaning behind outcome measures in FSHD / What…
On the 17th – 18th July 2026 join us for a two‑day masterclass in collaboration with FSHD Europe/ FSHD European Trial Network, exploring the full clinical, genetic,…
…TIMESLOT: Thursday 16 July 2026, 17:00 CEST …MAIN TITLE: From symptoms to outcomes: assessing FSHD in the modern era / Assessing disease progression in FSHD…
…TIMESLOT: Thursday 02 July 2026, 16:00 CEST …MAIN TITLE: Neuromuscular Disorders and Pregnancy: An Overview and a Patient’s Experience …PRESENTERS: Dr. Kristin Ørstavik Department of Neurology,…