Webinar ERN EURO-NMD Registry
Filnemus and ERN Euro-MND are organizing a Webinar on the ERN EURO-NMD registry on Wednesday, June 12, 2024 at 13:00 CEST. This webinar presented by…
This page aims to provide a comprehensive listing of meetings and events relevant to the neuromuscular field. If you wish to notify us of an event that should be included in our listing, please on this button below.
Filnemus and ERN Euro-MND are organizing a Webinar on the ERN EURO-NMD registry on Wednesday, June 12, 2024 at 13:00 CEST. This webinar presented by…
…THEME: Genetic therapies and therapy developments for muscular dystrophies (DMD, LGMD) …PRESENTERS: Prof. Dr. Annemieke Aartsma-Rus (Leiden University Medical Center, the Netherlands) Prof. Dr. Annemieke…
…TIMESLOT: Thursday 23 May 2024, 16:00 – 17:00 CEST …THEME: Genetic therapies and therapy developments for epileptic disorders …PRESENTERS: Prof. Dimitri Kullmann (UCL Queen Square Institute of…
…TIMESLOT: Tuesday 14 May – 16:00 – 17:00 CEST …THEME: N-of-1 to many personalized therapies …PRESENTERS: Terry Pirovolakis, Founder of CureSPG50 and Elpida Therapeutics Terry Pirovolakis, co-founder…
Delivered by Dr. Kathrin Meyer (Nationwide Children’s Hospital, Columbus, Ohio USA) & Marta Kollb-Sielecka (European Medicines Agency, The Netherlands) on Thursday 18 April 2024, 16:00…
ERN-RND is happy to announce that they are organising a Spring School “DBS in Dystonia” on 17-19 April 2024, which will be held online. …
Delivered by Prof. Dr. Hildegard Büning (Hannover Medical School, Germany) on Wednesday 10 April at 16:00 CEST This webinar is part of a series co-organised…
…TIMESLOT: Tuesday 2 April 2024 17:00 – 18:00 CET …THEME: Overview of gene therapy developments for clinicians & Gene therapy in clinical practice …PRESENTERS: Dr. Francina…
This online info session is open to all researchers and innovators at any career stage and from any field of research, especially young researchers. The…
…TIMESLOT: 14 March 2024 16:00 CET …THEME: New suggestions for management and treatment of patients with Pompe diseas …PRESENTER: Prof. Antonio Toscano (University of Messina,…
Exciting Announcement! Join EURORDIS-Rare Diseases Europe for a captivating webinar enhancing Patient Partnership, featuring a unique patient’s perspective from the Chair of our Educational Board,…
…TIMESLOT: 29 fev. 2024 16:00 CET …THEME: Rhabdomyolysis …PRESENTER: Prof. Antonio Toscano (University of Messina, Italy) …BIOSKETCH: PROF. ANTONIO TOSCANO, M.D., born 16/12/1956 in Messina,…