Advances in Gene Therapy in Myopathies
…TIMESLOT: Thursday, 26 June 2025 16:00 CEST …MAIN TITLE: Advances in Gene Therapy in Myopathies …PRESENTERS: Prof. Francesco Muntoni (University College of London, UK) Professor Francesco Muntoni…
19 Jun 2025
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Future EventsPast Events2025 - Jun
Pain Management in Myopathies
…TIMESLOT: Thursday, 19 June 2025 16:00 CEST …MAIN TITLE: Pain Management in Myopathies …PRESENTERS: Dr. Stefanie Glaubitz (Department of Neurology, Universitätsmedizin Göttingen, Germany) Dr. Stefanie Glaubitz…
Treatment of idiopathic inflammatory myopathies
…TIMESLOT: Thursday, 12 June 2025 16:00 CEST …MAIN TITLE: Treatment of idiopathic inflammatory myopathies …PRESENTERS: Prof. Marianne de Visser, (Amsterdam University Medical Center, The Netherlands) Prof. Marianne…
Genetic therapies of Neuromuscular Diseases
…TIMESLOT: Thursday, 05 June 2025 16:00 CEST …MAIN TITLE: Genetic therapies of Neuromuscular Diseases …PRESENTERS: Serge Braun, PharmD, PhD (Former AFM-Telethon Scientific Director, Member of the…
2025 - May
FSHD webinar series – Episode 4: “Clinical Trial Readiness”
…TIMESLOT: Wednesday, 28 May 2025 16:00 CEST …MAIN TITLE: Clinical Trial Readiness …PRESENTERS: Dr. Nicol Voermans & Ria de Haas, PhD (Radboud University Nijmegen Medical Centre, the…
Duchenne Care Conference 2025
Registration is now open for the Duchenne Care Conference 2025! The World Duchenne Organization is thrilled to announce that registrations are now open for the…
FSHD webinar series – Episode 3: “Pediatric FSHD”
…TIMESLOT: Thursday, 22 May 2025 16:00 CEST …MAIN TITLE: Pediatric FSHD …PRESENTERS: Prof. Tracey Willis (Robert Jones and Agnes Hunt Orthopaedic and District Hospital NHS Trust, UK)…
Recent Advances in Clinical Trials in Multiple System Atrophy
Recent Advances in Clinical Trials in Multiple System Atroph delivred by David Bendetowicz – Tuesday 20th May 2025 at 15:00 CET
ERN-RND webinar: “Recent Advances in Clinical Trials in Multiple System Atrophy”
Delivered by David Bendetowicz, CHU – Reference Center for Rare Multiple System Atrophy, University Hospital Bordeaux, France
FSHD webinar series – Episode 2: “International Clinical Care Guidelines”
…TIMESLOT: Thursday, 15 May 2025 16:00 CEST …MAIN TITLE: International Clinical Care Guidelines …PRESENTERS: Dr. Teresinha Evangelista (Institute of Myology & Pitié Salpêtrière Hospital – AP-HP, Paris,…
ERN-RND Webinar: “Neurogeriatric Aspects in Rare Forms of Ataxia annd HSP: Later on Clinical Manifestations and Secondary Symptoms”
13.05.2025, 3-4 pm CEST | ‘Neurogeriatric Aspects in Rare Forms of Ataxia annd HSP: Later on Clinical Manifestations and Secondary Symptoms’ by Eleni Zamba-Papanicolaou, Cyprus Institute of Neurology and Genetics,…
FSHD webinar series – Episode 1: “Genetic Diagnosis”
…TIMESLOT: Thursday, 08 May 2025 16:00 CEST …MAIN TITLE: Genetic Diagnosis …PRESENTERS: Prof. Emiliano Giardina (University of Rome Tor Vergata, Italy) Professor Emiliano Giardina, PhD — Associate Professor…