ERDERA – 2nd General Assembly Meeting Open Session
ERDERA will mark its 1st anniversary with a stimulating online event open to the entire rare disease community. Leading experts in the field of neurology,…
30 Oct 2025
Online
This page aims to provide a comprehensive listing of meetings and events relevant to the neuromuscular field. If you wish to notify us of an event that should be included in our listing, please on this button below.
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Future EventsPast Events2025 - Oct
Nutrition in Myopathies, Including Supplements
…TIMESLOT: Thursday 30 October 2025 16:00 CEST …MAIN TITLE: Nutrition in Myopathies, Including Supplements …PRESENTERS: Marianne Nordstrøm, PhD (Frambu Resource Centre for Rare Disorders and Oslo University…
Pompe Disease – Current Treatment and Future Prospects
…TIMESLOT: Thursday 23 October 2025 16:00 CEST …MAIN TITLE: Pompe Disease – Current Treatment and Future Prospects …PRESENTERS: Prof. Benedikt Schoser (Dept. of Neurology, Ludwig-Maximilians-University of Munich,…
Management of HyperCKemia
…TIMESLOT: Thursday 16 October 2025 16:00 CEST …MAIN TITLE: Management of HyperCKemia …PRESENTERS: Prof. Antonio Toscano (University of Messina, Italy) Prof. Antonio Toscano, M.D. (Messina, Italy,…
Exercise in Neuromuscular Disorders
…TIMESLOT: Friday 03 October 2025 16:00 CEST …MAIN TITLE: Exercise in Neuromuscular Disorders: overcoming barriers, staying motivated, and making movement work …PRESENTERS: Dr. Nicole B.M. Voet (Radboud…
2025 - Sep
Mito Month episode 4: Progressive External Ophthalmoplegia (PEO) and Differential Diagnosis
…TIMESLOT: Thursday 25 September 2025 16:00 CEST …MAIN TITLE: Progressive External Ophthalmoplegia (PEO) and Differential Diagnosis …PRESENTERS: Dr. Olimpia Musumeci (University of Messina, Italy) From October 2009…
ERN-RND webinar: “Patient Journeys as working documents to identify gaps in care and adapt care pathways and better meet the needs of patients”
Delivered by Petya Mihaylova and Mary Kearney, Irish Consortium: Tallaght University Hospital and Children’s Health Ireland & FARA Ireland on 23 September 2025, 3 -…
Mito Month episode 3: Overview of Mitochondrial Leucoencephalopathies
…TIMESLOT: Thursday 18 September 2025 16:00 CEST …MAIN TITLE: Overview of Mitochondrial Leucoencephalopathies …PRESENTERS: Dr. Anna Ardissone (Child Neurology Unit of the Carlo Besta Neurological Institute, Milan,…
ERN-RND webinar: “Neurological and non-neurological aspects in palliative care of FTD and PPA patients’ “
Delivered by Renate Wahl, University Hospital Aachen, Germany on 16 September 2025, 4 – 5 pm CEST.
Mito Month episode 2: Cognitive and Psychiatric issues in Primary Mitochondrial Disease
…TIMESLOT: Thursday 11 September 2025 16:00 CEST …MAIN TITLE: Cognitive and Psychiatric issues in Primary Mitochondrial Disease …PRESENTERS: Dr. Guido Urbano (Department of Neuroscience, University of…
Mito Month episode 1: Acute Onset in Infantile Mitochondrial Disorders
…TIMESLOT: Thursday 4 September 2025 16:00 CEST …MAIN TITLE: Acute Onset in Infantile Mitochondrial Disorders …PRESENTERS: Dr. Caterina Garone (Department of Medical and Surgical Sciences, University of Bologna,…
Genomic Newborn Screening as a Gateway to Genomic Medicine: Ethical, Social, Regulatory, and Privacy Issue
…TIMESLOT: Monday, 01 September 2025 16:00 CEST …MAIN TITLE: Genomic Newborn Screening as a Gateway to Genomic Medicine: Ethical, Social, Regulatory, and Privacy Issues …PRESENTERS: Prof.…