For an EU commitment to tackling Rare Diseases – RESULTS OF CONFERENCE (Budapest 2024)
The conference aimed to shape a European policy framework for rare diseases, integrating strategies in…
The conference aimed to shape a European policy framework for rare diseases, integrating strategies in…
The ERN EURO-NMD Working Group on Peripheral Nerve Diseases is pleased to present a Webinar…
We have received through the ERICA project a request from the EC do promote this…
The Screen4Care project, an innovative European research initiative, has launched recruitment for its newborn screening…
A Year of Growth and Impact As 2024 approaches its end, we are proud to…
It is with immense sadness that we announce that Professor Michel Fardeau passed away on…
We are delighted to introduce our newly redesigned website, tailored specifically for the neuromuscular disease…
Exciting News! Our course “Innovative Therapies and Personalized Medicine for Rare Diseases” is officially live!…
Dear ERN community, In an effort to support the transition from the current CPMS to…
We would like to inform you that we will be performing important maintenance on your…
For all information regarding the 8th ERN EURO-NMD Annual Meeting in Essen, please go to…