World Mitochondrial Disease Awareness Month 2026
To mark World Mitochondrial Disease Awareness Month, ERN EURO-NMD is pleased to present a special…
September 15, 2026
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Applications open for the 2027 Open Academy x ERDERA Schools
Applications are open for the EURORDIS Open Academy x ERDERA Schools 2027: two in-person training…
Survey on Hypoglycemia Practices in Pediatrics – MetabERN and Endo-ERN collaboration
Survey on Hypoglycemia Practices in Pediatrics Dear Colleague, We invite you to participate in a…
Discover our 3 new Patient Journeys!
EURO-NMD is pleased to introduce three new Patient Journeys, dedicated to: Amyotrophic Lateral Sclerosis (ALS)…
EURO-NMD renews support for the EMQN Neuromuscular Disorders EQA Scheme
EURO-NMD is pleased to announce the renewal of its agreement with the European Molecular Genetics…
Learn how to use the Clinical Patient Management System (CPMS)
Learn how to use the Clinical Patient Management System (CPMS), the secure European platform that…
Consultation: Guidelines 1/2026 on processing of personal data for scientific research purposes.
There is an ongoing consultation until 25/06/2026 regarding “Guidelines 1/2026 on processing of personal data…
Pre-registration now open for the 2026 Summer School on Multidisciplinary Management of NMDs
The ERN EURO-NMD and FILNEMUS are pleased to announce the third edition of the Summer…
New round of CPMS 2.0 workshops
Learn how to use the Clinical Patient Management System (CPMS), the secure European platform that…
New Position Paper out: “European Reference Networks – a flagship activity of the EU in the field of rare and complex diseases: from 2017 to 2025”
The European Reference Networks (ERNs) have produced a position paper outlining their evolution since 2017,…
Mitochondrial Disorders Course of EURO-NMD Academy accredited by the EACCME®
Welcome to the EURO-NMD Academy: Where Neuromuscular Disorders Education is Revolutionized! Our cutting-edge platform, powered by…
2026 Call for Applications – Affiliated Partner within the European Reference Networks
The Board of Member States (BOMS), convened in Rome in 2025, has formally endorsed the…