16 June 2025: First CPMS Day – A New Collaborative Initiative
What are CPMS Days? CPMS Days are structured, theme-based case discussions hosted within the Clinical…
April 18, 2025
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Call for Volunteers – EMQN Assessors for EQA Scheme Neuromuscular Disorders (NMDs)
Exciting opportunity to join the EMQN Team as a Volunteer Assessor for the new Neuromuscular…
For an EU commitment to tackling Rare Diseases – RESULTS OF CONFERENCE (Budapest 2024)
The conference aimed to shape a European policy framework for rare diseases, integrating strategies in…
EURO-NMD Webinar Series on Dysimmune and inflammatory neuropathies! (Replay available now!)
The ERN EURO-NMD Working Group on Peripheral Nerve Diseases is pleased to present a Webinar…
“Survey on unmet needs in personalised medicine management and the potential of personalised health technologies for healthcare professionals”
We have received through the ERICA project a request from the EC do promote this…
Screen4Care launches recruitment for Newborn Screening
The Screen4Care project, an innovative European research initiative, has launched recruitment for its newborn screening…
ERN EURO-NMD Retrospective of 2024
A Year of Growth and Impact As 2024 approaches its end, we are proud to…
Obituary: Prof Michel Fardeau
It is with immense sadness that we announce that Professor Michel Fardeau passed away on…
A new website is coming!
We are delighted to introduce our newly redesigned website, tailored specifically for the neuromuscular disease…
EJP RD: New online course Innovative Therapies and Personalized Medicine for Rare Diseases
Exciting News! Our course “Innovative Therapies and Personalized Medicine for Rare Diseases” is officially live!…
Videos for CPMS 2.0
Dear ERN community, In an effort to support the transition from the current CPMS to…
EURO-NMD Academy (Moodle): Performing important maintenance!
We would like to inform you that we will be performing important maintenance on your…