ERN-RND webinar: Social and life style issues related to ataxias and HSP
13 January 2026 | 3 – 4 pm CET Speaker: Lotte van de Venis and Lori Renna Linton Radboud University Meidcal Center, Nijmegen, the Netherlands,…
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13 January 2026 | 3 – 4 pm CET Speaker: Lotte van de Venis and Lori Renna Linton Radboud University Meidcal Center, Nijmegen, the Netherlands,…
…TIMESLOT: Thursday 08 January 2026, 16:00 CET …MAIN TITLE: Challenges in the diagnosis and treatment of inherited neuropathies …PRESENTERS: Dr. Davide Pareyson (Fondazione IRCCS Istituto Neurologico…
…TIMESLOT: Thursday 18 December 2025, 16:00 CET …MAIN TITLE: Update on Diagnostic Imaging in Neuromuscular Diseases …PRESENTERS: Prof. Giorgio Tasca (John Walton Muscular Dystrophy Research Centre,…
…TIMESLOT: Thursday 11 December 2025, 16:00 CET …MAIN TITLE: Mental health in Neuromuscular Disorders …PRESENTERS: Dr. Tonje Elgsås (Frambu Resource center for rare diseases, Norway) & Arabela Acălinei…
…TIMESLOT: Wednesday 10 December 2025, 16:00 CEST …MAIN TITLE: Management of Fatigue in Myopathies …PRESENTERS: Prof. Michelangelo Mancuso (Azienda Ospedaliera University of Pisa, Italy) Md, PhD, Professor Michelangelo…
ERDERA – the European Rare Diseases Research Alliance – is pleased to announce the upcoming 2nd International Conference on Clinical Research Networks (CRNs) for Rare…
09.12.2025, 1-2 pm CET – The Importance of Genetic Counselling in the Diagnostic of Rare Neurological Disorders delivred by Maria Judit Molnar, Semmelweis University, Budapest,…
WORKSHOP AIM and OBJECTIVES This EURO-NMD Workshop aims to bring together key stakeholders to improve the clinical management, equitable access, and sequencing of therapies for…
Join us for the AcadeMYO Winter School 2025, a unique opportunity to enhance your expertise in myology — the fascinating field dedicated to neuromuscular science!…
…TIMESLOT: Thursday 04 December 2025 16:00 CET …MAIN TITLE: Update on Congenital Myasthenic Syndromes …PRESENTERS: Prof. Hanns Lochmüller (Department of Neurology, Faculty of Medicine, University of…
The 7th Neuromuscular Translational Training School, organized by the ERN EURO-NMD and hosted by the Leiden University Medical Center (LUMC), focuses on therapy development from…
02.12.2025, 3-4 pm CET | ‘Fluid Biomarkers in FTD’ by Domenico Plantone, AOU – University Hospital Siena, Italy. (ERN-RND)