ERDERA – 2nd General Assembly Meeting Open Session
ERDERA will mark its 1st anniversary with a stimulating online event open to the entire rare disease community. Leading experts in the field of neurology,…
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ERDERA will mark its 1st anniversary with a stimulating online event open to the entire rare disease community. Leading experts in the field of neurology,…
…TIMESLOT: Thursday 30 October 2025 16:00 CEST …MAIN TITLE: Nutrition in Myopathies, Including Supplements …PRESENTERS: Marianne Nordstrøm, PhD (Frambu Resource Centre for Rare Disorders and Oslo University…
As part of the ERN-RND Annual Meeting 2025 a Scientific Symposium on “European Healthcare for RND Patients” will be held on Tuesday 28th October 2025,…
The World Orphan Drug Congress (WODC) 2025 is the premier global event dedicated to advancing the development and delivery of treatments for rare diseases. Bringing…
The 2nd European Charcot-Marie-Tooth (CMT) Specialists Conference will take place in Antwerp, Belgium, from October 23 to 25, 2025. Organized jointly by the European CMT…
…TIMESLOT: Thursday 23 October 2025 16:00 CEST …MAIN TITLE: Pompe Disease – Current Treatment and Future Prospects …PRESENTERS: Prof. Benedikt Schoser (Dept. of Neurology, Ludwig-Maximilians-University of Munich,…
…TIMESLOT: Thursday 16 October 2025 16:00 CEST …MAIN TITLE: Management of HyperCKemia …PRESENTERS: Prof. Antonio Toscano (University of Messina, Italy) Prof. Antonio Toscano, M.D. (Messina, Italy,…
Join us in Vienna, Austria, from October 7th to 11th, 2025, for the 30th annual International Congress of the World Muscle Society. Building on the…
…TIMESLOT: Friday 03 October 2025 16:00 CEST …MAIN TITLE: Exercise in Neuromuscular Disorders: overcoming barriers, staying motivated, and making movement work …PRESENTERS: Dr. Nicole B.M. Voet (Radboud…
…TIMESLOT: Thursday 25 September 2025 16:00 CEST …MAIN TITLE: Progressive External Ophthalmoplegia (PEO) and Differential Diagnosis …PRESENTERS: Dr. Olimpia Musumeci (University of Messina, Italy) From October 2009…
We are delighted to announce the second edition of this Summer School, co-organized by the European Reference Network for Rare Neuromuscular Diseases (ERN EURO-NMD) and…
Delivered by Petya Mihaylova and Mary Kearney, Irish Consortium: Tallaght University Hospital and Children’s Health Ireland & FARA Ireland on 23 September 2025, 3 -…