ERDERA Joint Transnational Call 2025 Information Webinar
“Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation” The European Rare Diseases Research Alliance (ERDERA) invites you to…
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“Pre-clinical therapy studies for rare diseases using small molecules and biologicals – development and validation” The European Rare Diseases Research Alliance (ERDERA) invites you to…
…TIMESLOT: Thursday 12 December 2024 16:00 CET …THEME: The role of biopsy in Congenital Myopathies …PRESENTERS: Prof. Dr. Norma Romero (Institute of Myology, Paris, France) Norma…
The ERICA 4th General Assembly & ERN Research Conference will take place from December 11th to December 13th, 2024 in Udine, Italy. Hosted by MetabERN.…
Join us for this unique opportunity to perfect your skills in myology, an increasingly exciting discipline dedicated to neuromuscular science! All professionals manifesting some interest…
Duchenne Patient Academy is organized by the Duchenne Data Foundation in collaboration with the World Duchenne Organization. Upon the launch of the first edition in…
…TIMESLOT: Thursday 05 December 2024 16:00 CET …THEME: The role of muscle biopsy in inflammatory myopathies …PRESENTERS: Prof. Werner Stenzel (Charité – Universitätsmedizin, Berlin, Germany)…
The European Commission has published the 5-year evaluation report on ERNs & Healthcare Providers. The webinar «European Reference Network evaluation: the way forward» will present…
Together For Rare Diseases with ERICA are launching a series of webinars on how to work between industry and ERNs for partnering in research with…
This conference will present the EESC’s exploratory opinion drawn up at the request of the Hungarian Presidency of the Council of the EU on Leaving No…
…TIMESLOT: Thursday 28 November 2024 16:00 CET …THEME: Myopathology for muscular dystrophies …PRESENTERS: Prof. Edoardo Malfatti (Paris-Est AP-HP, France) Clinical, myopathology, genetic translational scientist in neuromuscular disorders,…
26.11.2024, 3-4 pm CET| ‘Differential diagnosis aside from neuroimaging for non-Leukodystrophy white matter diseases’ by Nicole Wolf, Amsterdam Leukodystrophy Center, VUMC, Netherlands. SIGN UP here
…TIMESLOT: Thursday 21 November 2024 16:00 CET …THEME: Muscle pathology of storage diseases with focus on polyglucosan and lipid storage myopathies …PRESENTERS: Prof. Anders Oldfors (University of…