Setting up a FAIR registry for Euro-NMD
https://youtu.be/LIpUU-wj530 Watch this video-presentation by Peter-Bram van ‘t Hoen, where he shares his first experiences and plans for setting up an European Reference Network…
23 Mar 2021
Events
We will keep the event information shown here as up to date as possible however, we strongly recommend that you check directly with any event that you are planning to attend to ensure it is indeed taking place at this time.
This page aims to provide a comprehensive listing of meetings and events relevant to the neuromuscular field. If you wish to notify us of an event that should be included in our listing, please on this button below.
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Future EventsPast Events2021 - Mar
Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity
Click here to view webinar 23MAR 2021 15:00-16:00 CET Challenges in Frontotemporal Dementia: clinical, genetic and pathological heterogeneity’ by Harro Seelaar The speaker is Neurologist…
Telemedicine in NMD: state of the art
Delivered by: Sabrina Sacconi and Gabriele Siciliano Telemedicine in NMD: state of the art Sabrina SACCONI is Professor of Neurology at Nice University Hospital…
Myoclonus dystonia
Next ERN-RND joint webinar with Euro-NMD and European Academy of Neurology 9 March, 15-16h CET Speaking Belén Pérez Dueñas Of Vall d’Hebron University Hospital, Barcelona,…
2021 - Feb
Rare Diseases Day 2021
Rare Disease Day 2021 will take place on Sunday 28th February and around the world many awareness raising events have been organised. We would like…
Occurrence of both skeletal muscle and peripheral nerve involvement in genetic and acquired disorders
By Prof Antonio Toscano, Neurologist and Neuromuscular Expert, Dean of the Medical Faculty of the University of Messina, IT Prof. Toscano scientific activity has been…
2021 - Jan
Progressive Supranuclear Palsy – Update on Diagnostics, Biomarkers & Therapies
Click to view webinar Next ERN-RND joint webinar with Euro-NMD and the European Academy of Neurology is on 26 Jan 2021 at 3:00 PM (CET)…
Sleepiness, fatigue and apathy in DM1 patients
Dr Benjamin Gallais, ÉCOBES – Recherche et transfert, Cégep de Jonquière Myotonic Dystrophy’s CNS manifestations are most incapacitating and Dr Gallais has spent many…
2020 - Dec
Challenges in the diagnosis and management of patients with Myasthenia Gravis
This Webinar has been delivered by Prof Isabel Leite, University of Oxford, UK on Thursday 10 December 16:00 (Paris Time) This is part of a…
The ERICA Project: joining forces to integrate research and innovation capacity across all 24 European Reference Networks
The European Rare disease research Coordination and support Action (ERICA) Project received a positive evaluation for a H2020 grant to establish a structural framework in support of the…
The latest EJPRD newsletter is now online.
Please, read it online clicking on the link we provide. The European Joint Programme on Rare Diseases (EJP RD) brings over 130 institutions (including all 24 ERNs) from 35…
Functional movement disorders: a diagnostic guide
Educational webinars on Neurorehabilitation jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of…