For an EU commitment to tackling rare diseases
This conference will present the EESC’s exploratory opinion drawn up at the request of the Hungarian Presidency of the Council of the EU on Leaving No…
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This conference will present the EESC’s exploratory opinion drawn up at the request of the Hungarian Presidency of the Council of the EU on Leaving No…
…TIMESLOT: Thursday 28 November 2024 16:00 CET …THEME: Myopathology for muscular dystrophies …PRESENTERS: Prof. Edoardo Malfatti (Paris-Est AP-HP, France) Clinical, myopathology, genetic translational scientist in neuromuscular disorders,…
26.11.2024, 3-4 pm CET| ‘Differential diagnosis aside from neuroimaging for non-Leukodystrophy white matter diseases’ by Nicole Wolf, Amsterdam Leukodystrophy Center, VUMC, Netherlands. SIGN UP here
…TIMESLOT: Thursday 21 November 2024 16:00 CET …THEME: Muscle pathology of storage diseases with focus on polyglucosan and lipid storage myopathies …PRESENTERS: Prof. Anders Oldfors (University of…
19.11.2024, 3-4 pm CET| ‘Autonomic dysfunction in movment disorders’ by Pietro Guaraldi, Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy. SIGN UP…
14.11.2024, 4-5 pm CET| ‘DBS in Dystonia – the network perspective’ by Juho Joutsa, Turku University Hospital,Finnland. SIGN UP here
…TIMESLOT: Thursday 14 November 2024 16:00 CET …THEME: Electron microscopy for myopathies …PRESENTERS: Prof. Giovanna Cenacchi (Head of the Subcellular Pathology and Diagnostics Laboratory, S. Orsola-Malpighi…
…TIMESLOT: Thursday 07 November 2024 16:00 CET …THEME: Basic techniques for muscle biopsies …PRESENTERS: Prof. Tiziana Mongini (Department of Neuroscience of the University of Turin, Italy) Expert…
…TIMESLOT: Thursday 24 October 2024 – 16:00 – 17:00 CET …THEME: Novel treatments in hereditary neuropathies …PRESENTERS: Dr. Peric Stojan (Department for Neuromuscular Disorders of the Neurology Clinic,…
…TIMESLOT: Wednesday 23 October 2024 – 16:00 – 17:00 CEST …THEME: EURO-NMD Patient Webinar Series: Gene Therapy …PRESENTERS: Olga Germanenko (SMA Europe) & Prof. Dr. Annemieke…
22.10.2024, 3-4 pm CET| ‘Neurogeriatric aspects and neurological aspects in palliative care of MSA, PSP and advanced PD’ by Martin Klietz, Hannover Medical School, Germany.…
…TIMESLOT: Thursday 17 October 2024 – 16:00 – 17:00 CEST …THEME: “Management of relationships and sexuality in ALS patients” …PRESENTERS: Rachael Marsden (Oxford University Hospitals, UK)…