Mild motor impairment (MMI) in ALS
…TIMESLOT: Thursday 19 March 2026, 16:00 CET …MAIN TITLE: Mild motor impairment (MMI) in ALS …PRESENTERS: Prof. Michael Benatar (University of Miami, USA) Dr. Michael Benatar,…
17 Mar 2026
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2026 - Mar
ERN-RND Webinar: “Palliative care for leukodystrophies and other rare neurological diseases (pediatric focus)”
17 March 2026 | 3 – 4 pm CET Zoom Registration Speaker: Nicole Wolf, Amsterdam University Medical Centers, Netherlands
EXPERTS-ALS – a Bayesian biomarker-led drug screening platform in ALS
…TIMESLOT: Thursday 12 March 2026, 16:00 CET …MAIN TITLE: EXPERTS-ALS – a Bayesian biomarker-led drug screening platform in ALS …PRESENTERS: Prof. Martin Turner (University of Oxford,…
Autonomic and non-motor symptoms in ALS
…TIMESLOT: Thursday 05 March 2026, 16:00 CET …MAIN TITLE: Autonomic and non-motor symptoms in ALS …PRESENTERS: Prof. Ammar Al-Chalabi (King’s College London, UK) Professor Ammar Al-Chalabi,…
ERN-RND Webinar: “Getting the most out of physiotherapy in Dystonia”
03 March 2026 | 3 – 4 pm CET Zoom Registration Speaker: Maarten Nijkrake Radboud University Medical Center, Nijmegen, The Netherlands
2026 - Feb
Genetics Month episode 4: Newborn Screening and Impact on Rare Diseases
…TIMESLOT: Thursday 26 February 2026, 16:00 CET …MAIN TITLE: Newborn Screening and Impact on Rare Diseases …PRESENTERS: Prof. Jim Bonham (President of the International Society of…
Past events
Genetics Month episode 3: Genetics of Amyotrophic Lateral Sclerosis and Impact on New Therapies
…TIMESLOT: Thursday 19 February 2026, 16:00 CET …MAIN TITLE: Genetics of Amyotrophic Lateral Sclerosis and Impact on New Therapies …PRESENTERS: Dr. Marcella Neri (University Hospital St…
Genetics Month episode 2: CPMS Use and Value for Genetic Case Discussions
…TIMESLOT: Thursday, 12 February 2026, 16:00 CET …MAIN TITLE: CPMS Use and Value for Genetic Case Discussions …PRESENTERS: Dr. Fernanda Fortunato (University Hospital St Anna, Ferrara,…
Genetics Month episode 1: ERDERA Diagnostic Research Workstream
…TIMESLOT: Thursday, 5 February 2026, 16:00 CET …MAIN TITLE: ERDERA Diagnostic Research Workstream …PRESENTERS: Dr. Ana Topf, (Newcastle University, UK) Ana Topf is a Senior…
2026 - Jan
CMT episode 4: Current Progress in Charcot-Marie-Tooth disease (CMT) Treatments
…TIMESLOT: Thursday 29 January 2026, 16:00 CET …MAIN TITLE: Current Progress in Charcot-Marie-Tooth disease (CMT) Treatments …PRESENTERS: Prof. Kleopas Kleopa (Cyprus Institute of Neurology and Genetics…
CMT episode 2: Progress in Genetic Diagnosis for Neuropathies
…TIMESLOT: Thursday 15 January 2026, 16:00 CET …MAIN TITLE: Progress in Genetic Diagnosis for Neuropathies …PRESENTERS: Dr. Andrea Cortese (University College London, Department of Neuromuscular Diseases,…
ERN-RND webinar: Social and life style issues related to ataxias and HSP
13 January 2026 | 3 – 4 pm CET Speaker: Lotte van de Venis and Lori Renna Linton Radboud University Meidcal Center, Nijmegen, the Netherlands,…