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What are ERNs?
Why rare diseases?
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Focusing on Improving Patient Health Outcomes: The Role of Patient Organisations
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Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Board Members
Executive Committee
EURO-NMD Coordination team
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Continuous Monitoring
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
User Guide and other relevant resources
Patients
Patient Advisory Board
Overview of Patient Participation in EURO-NMD
Patient Representatives
Patient Journeys
Focusing on Improving Patient Health Outcomes: The Role of Patient Organisations
Patient tools & resources
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
CPMS days
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines-Consensus-CDST
Educational / Training School
Educational Videos
EURO-NMD endorsement of educational activities
Collaborations
European Projects
Inter-ERN Groups
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding is ongoing
Registry Onboarding Dashboard
Data Entry Reimbursement Protocol
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Name
Institution
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Josep Gamez
Hospital Universitari Vall d’ Hebron – Barcelona
Spain
Andrea Gangfuss
Universitätsklinikum Essen
Germany
Patricia Garay
Hospital Universitario de Donostia
Spain
Jeremy Garcia
CHU de Nice
France
Elena Garcia
Hospital Universitari Vall d’ Hebron – Barcelona
Spain
Pilar García Casanova
Hospital UIP La Fe – Valencia
Spain
Cristina Garrido
Centro Hospitalar Universitario do Porto EPE (CHUP)
Portugal
Roberto Gasparotti
Spedali Civili di Brescia
Italy
Bruno F. Gavassini
Azienda Ospedale – Università Padova
Italy
Malgorzata Gawel
SPCSJ, Banacha, Warszawa (Neurology Department)
Poland
Michael Gaytant
University Medical Centre Utrecht
The Netherlands
Elisabetta Gazzerro
IRCCS Istituto Giannina Gaslini – Genova
Italy
