Marguerite Friconneau was diagnosed with Myasthenia Gravis in 1985. She has been elected as a member of the Board of Directors of the AFM-Téléthon since 2007. She has also been a member of the French patient group on Myasthenia Gravis since 1987, and chaired that group from 1994 to 2009. The Myasthenia Gravis patient group is dedicated to patient care and advocacy with the scientific and medical communities as well as public authorities. Marguerite Friconneau was actively involved in the design of the French National Guidance Guide called PNDS in 2015.