University Clinic Essen

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  +492017232508  |     uk-essen.de  |    ulrike.schara@uk-essen.de

International expert for NMD in childhood and adolescents
Member of scientific boards (Benni & Co, DMD)
Deutsche Myasthenie Gesellschaft Deutsche Duchenne Stiftung e. V.
President of the German speaking Pediatric Neurology Society one of two speakers of Muskelzentrum Nordrhein
Reviewer in several peer reviewed journals
Member of the Editorial Board “Neuromuscular Disorders”
Member of Advisory Boards of pharmaceutical industry in case of clinical trials in NMD rnRunning the only centre for Myasthenia Gravis and cong myasthenic syndromes in Germany
Member of the research committee ENMC
Main author of two textbooks on NMD and co-author of different books about NMD

The HCP can bring the experiences of national/international networks into the ERN, taking part in distribution of knowledge to others, contribute to (international)/European standards of care, development of new drugs by taking part in studies, can share expertise with other experts and colleagues by board work, publications, and to patient organisations, by reveiwing grant application and manuscripts and writing manuscripts, can add scientific work.

Board representation

Prof Dr Ulrike Schara

  ulrike.schara@uk-essen.de  |    +49 201 7232356
Ulrike Schara

Ulrike Schara is a paediatric neurologist at the university hospital in Essen, Germany. She has a long-standing clinical interest in muscle disorders and CMS. She has recently started to build a patient registry for CMS in collaboration with TREAT-NMD.

Location

Group membership

University Clinic Essen participates in the following groups…

Specialised Groups

Muscle diseases
Peripheral Nerve Disease
Motor Neuron Disease
Neuromuscular Junction Defects
Mitochondrial Diseases

Cross Cutting Specialised Groups

Neuromuscular Imaging
Neurophysiology
Neuromuscular Pathology
Genetics

Advisory Boards

Ethics
Research
Education
University Clinic Essen is registered with the Care and Trial Site Registry

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern