International expert for NMD in childhood and adolescents
Member of scientific boards (Benni & Co, DMD)
Deutsche Myasthenie Gesellschaft Deutsche Duchenne Stiftung e. V.
President of the German speaking Pediatric Neurology Society one of two speakers of Muskelzentrum Nordrhein
Reviewer in several peer reviewed journals
Member of the Editorial Board “Neuromuscular Disorders”
Member of Advisory Boards of pharmaceutical industry in case of clinical trials in NMD rnRunning the only centre for Myasthenia Gravis and cong myasthenic syndromes in Germany
Member of the research committee ENMC
Main author of two textbooks on NMD and co-author of different books about NMD
The HCP can bring the experiences of national/international networks into the ERN, taking part in distribution of knowledge to others, contribute to (international)/European standards of care, development of new drugs by taking part in studies, can share expertise with other experts and colleagues by board work, publications, and to patient organisations, by reveiwing grant application and manuscripts and writing manuscripts, can add scientific work.
Ulrike Schara-Schmidt is a paediatric neurologist at the university hospital in Essen, Germany. She has a long-standing clinical interest in muscle disorders and CMS. She has recently started to build a patient registry for CMS in collaboration with TREAT-NMD.