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About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
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What are ERNs?
Why rare diseases?
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Registry Hub for Rare Neuromuscular Diseases
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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Registry Onboarding Dashboard
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Members contacts
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Members contacts
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Name
Institution
Country
A
Annemieke Aartsma-Rus
Leiden University Medical Center
Netherlands
Angela Abicht
Klinikum der Universität München
Germany
Arabela Acalinei
European Alliance of Neuromuscular Disorders Associations (EAMDA)
Romania
Blanka Adamova
Fakultní Nemocnice Brno
Czech Republic
Emilio Albamonte
Opedale Niguarda di Milano (including Nemo Clinical Centre)
Italy
Houda Ali
Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-Salpêtrière
France
Greta Alì
Azienda Ospedaliera Universitaria Pisana U.O.C. Neurologia
Italy
Lutgarde Allard
European Myasthenia Gravis Association (EuMGA)
Belgium
Alicia Alonso-Jimenez
Antwerp University Hospital (UZA) (University Hospital Belgium)
Belgium
Jorge Alonzo Perez
Hospital de la Santa Creu i Sant Pau – Barcelona
Spain
Silvia Alvares
Centro Hospitalar Universitario do Porto EPE (CHUP)
Portugal
Rosa Amorim
Centro Hospitalar Universitario do Porto EPE (CHUP)
Portugal