Data Entry Reimbursement Protocol
As part of the European Commission (EC) support for the functioning of the ERN registries…
February 15, 2024
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Registry Hub Paper out now!
The EURO-NMD Registry paper has just been published on the Orphanet Journal of Rare Diseases.…
Registry Performance Updates and Onboarding Guidance
Registry Update (12/03/2026) IT08 PISA IRo7 Beaumont Hospital, DUBLIN DE39 GOETTINGEN ES12 Hosp UIF La…