Data Entry Reimbursement Protocol
As part of the European Commission (EC) support for the functioning of the ERN registries…
As part of the European Commission (EC) support for the functioning of the ERN registries…
The EURO-NMD Registry paper has just been published on the Orphanet Journal of Rare Diseases.…
Registry Onboarding is ongoing The ERN EURO-NMD Registry Hub intends to collect data from the…