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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Board Members
Executive Committee
EURO-NMD Coordination team
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Continuous Monitoring
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
User Guide and other relevant resources
Patients
Patient Advisory Board
Overview of Patient Participation in EURO-NMD
Patient Representatives
Patient Journeys
Focusing on Improving Patient Health Outcomes: The Role of Patient Organisations
Patient tools & resources
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Guidelines-Consensus-CDST
Educational / Training School
Educational Videos
EURO-NMD endorsement of educational activities
Collaborations
European Projects
Inter-ERN Groups
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding is ongoing
Registry Onboarding Dashboard
Data Entry Reimbursement Protocol
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Jan Kirschner
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Houda Ali
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Noemi Brolatti
Simone Mahal
Gunnar Buyse
Michela Catteruccia
Stefano Cotti Piccinelli
Liesbeth De Waele
Claudia Dosi
Jana Haberlova
Cristina Garrido
Nathalie Goemans
Shahram Attarian
Susana Quijano-Roy
Heike Koelbel
Lea Leonardis
Ivan Litvinenko
Albert Ludolph
Elena Mazzone
Julita Medina
Maggie Walter
Eugenio Maria Mercuri
Ulrike Schara-Schmidt
Wolfgang Müller-Felber
Andrés Nascimento Osorio
Chiara Panicucci
Massimilanio Filosto
Astrid Pechmann
Marina Pedemonte
Antonella Pini
Alice Zanolini
Emmanuelle Salort-Campana
Valeria Sansone
Beate Schlotter-Weigel
Daniel Natera de Benito
Francina Munell
Ana Paula Sousa
Thomas Sejersen
Eva Stumpe
Andreas Ziegler
Juan F. Vázquez-Costa
Manuela Santos
Veria Vacchiano
Adele D'Amico
Claudia Weiss
Elisabetta Roma
Enrico Bertini
Federica Ricci
Isabella Moroni
Marta Gomez Garcia de la Banda
Nicolas Deconinck
Riccardo Masson
Vitaliy Matyushenko
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