What’s new in FSHD?
This webinar is about what is new in FSHD. The field of FSHD is rapidly evolving. The clinical and genetic variability of this disease become more…
20 May 2021
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webinars EURO-NMD
This page aims to provide a comprehensive listing of meetings and events relevant to the neuromuscular field. If you wish to notify us of an event that should be included in our listing, please on this button below.
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Future EventsPast Events2021 - May
Muscle and Ageing
This Euro-NMD webinar, organised in collaboration with ERN-RND Rare Neurological Disorders and the European Academy of Neurology, is about Muscle and Ageing. It is…
2021 - Apr
Modeling disease progression in GNE Myopathy
https://youtu.be/D6SaNX6uM-k Delivered by: Melanie Quintana Description: We describe a Bayesian repeated measures model based on quantitative muscle strength data from a prospective Natural History…
2021 - Mar
Setting up a FAIR registry for Euro-NMD
https://youtu.be/LIpUU-wj530 Watch this video-presentation by Peter-Bram van ‘t Hoen, where he shares his first experiences and plans for setting up an European Reference Network…
Telemedicine in NMD: state of the art
Delivered by: Sabrina Sacconi and Gabriele Siciliano Telemedicine in NMD: state of the art Sabrina SACCONI is Professor of Neurology at Nice University Hospital…
2021 - Feb
Occurrence of both skeletal muscle and peripheral nerve involvement in genetic and acquired disorders
By Prof Antonio Toscano, Neurologist and Neuromuscular Expert, Dean of the Medical Faculty of the University of Messina, IT Prof. Toscano scientific activity has been…
2021 - Jan
Sleepiness, fatigue and apathy in DM1 patients
Dr Benjamin Gallais, ÉCOBES – Recherche et transfert, Cégep de Jonquière Myotonic Dystrophy’s CNS manifestations are most incapacitating and Dr Gallais has spent many…
2020 - Dec
Challenges in the diagnosis and management of patients with Myasthenia Gravis
This Webinar has been delivered by Prof Isabel Leite, University of Oxford, UK on Thursday 10 December 16:00 (Paris Time) This is part of a…
2020 - Nov
Congenital Myasthenia Syndromes- an update
This webinar was delivered by Dr Sithara Ramdas. Sithara is a Consultant Paediatric Neurologist and an Honorary Senior Lecturer University Of Oxford Oxford University…
2020 - Oct
Personalized care for patients with ALS: ALS Home Monitoring & Caring
This webinar was delivered by Drs Anita Beelen and Esther Kruitwagen-van Reneen – Neuromuscular diseases in the University Medical Center Utrecht in the Netherlands.…
2020 - Sep
The basis of genetic approaches for NMDs – using DMD as a paradigm
This webinar was be delivered by Annemieke Aartsma-Rus, who is a Professor of Translational Genetics, Department of Human Genetics, Leiden University Medical Center in…
2020 - Aug
Painful neuropathies: From diagnosis to treatment
This webinar was delivered by Janneke Hoeijmakers in August 2020. Janneke is a medical advisor for the diagnosis group small fiber neuropathy of the…