ERN-RND Webinar: “Palliative care for leukodystrophies and other rare neurological diseases (pediatric focus)”
17 March 2026 | 3 – 4 pm CET Speaker: Nicole Wolf, Amsterdam University Medical Centers, Netherlands
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17 March 2026 | 3 – 4 pm CET Speaker: Nicole Wolf, Amsterdam University Medical Centers, Netherlands
…TIMESLOT: Thursday 12 March 2026, 16:00 CET …MAIN TITLE: EXPERTS-ALS – a Bayesian biomarker-led drug screening platform in ALS …PRESENTERS: Prof. Martin Turner (University of Oxford,…
SMA Europe takes great pride in inviting you to the 5th International Scientific Congress on Spinal Muscular Atrophy (SMA), from 11th to 14th March 2026…
We are pleased to announce a scientific workshop dedicated to the role of External Quality Assessment (EQA) in the correct interpretation of muscle biopsy. 📅…
…TIMESLOT: Thursday 05 March 2026, 16:00 CET …MAIN TITLE: Autonomic and non-motor symptoms in ALS …PRESENTERS: Prof. Ammar Al-Chalabi (King’s College London, UK) Professor Ammar Al-Chalabi,…
03 March 2026 | 3 – 4 pm CET Speaker: Maarten Nijkrake Radboud University Medical Center, Nijmegen, The Netherlands
Rare Disease Day is a globally coordinated movement dedicated to rare diseases, striving for equity in social opportunities, healthcare, and access to diagnosis and therapies…
This webinar is not available for replay. …TIMESLOT: Thursday 26 February 2026, 16:00 CET …MAIN TITLE: Newborn Screening and Impact on Rare Diseases …PRESENTERS: Prof. Jim…
The 4th European Congress of Neurology and Neuropsychiatry will take place on February 23–24, 2026, in Paris, France, as a hybrid event, bringing together onsite…
…TIMESLOT: Thursday 19 February 2026, 16:00 CET …MAIN TITLE: Genetics of Amyotrophic Lateral Sclerosis and Impact on New Therapies …PRESENTERS: Dr. Marcella Neri (University Hospital St…
…TIMESLOT: Thursday, 12 February 2026, 16:00 CET …MAIN TITLE: CPMS Use and Value for Genetic Case Discussions …PRESENTERS: Dr. Fernanda Fortunato (University Hospital St Anna, Ferrara,…
The upcoming TREAT-NMD® International Conference, will take place on 10–12 February 2026 in Lisbon, Portugal. This in-person event will bring together patients, clinicians, researchers, industry leaders, and…