ERN-RND – Spring School 2024 “DBS in Dystonia” – SAVE THE DATE
ERN-RND is happy to announce that they are organising a Spring School “DBS in Dystonia” on 17-19 April 2024, which will be held online. …
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ERN-RND is happy to announce that they are organising a Spring School “DBS in Dystonia” on 17-19 April 2024, which will be held online. …
Delivered by Prof. Dr. Hildegard Büning (Hannover Medical School, Germany) on Wednesday 10 April at 16:00 CEST This webinar is part of a series co-organised…
The 2024 edition of the International Myotonic Dystrophy Consortium Meeting (IDMC-14) will be held in Nijmegen from 9-13 April 2024. #Nijmegen is the oldest city in the Netherlands and…
…TIMESLOT: Tuesday 2 April 2024 17:00 – 18:00 CET …THEME: Overview of gene therapy developments for clinicians & Gene therapy in clinical practice …PRESENTERS: Dr. Francina…
This online info session is open to all researchers and innovators at any career stage and from any field of research, especially young researchers. The…
We are pleased to announce the 8th in our series of meetings on mitochondrial disorders and the search for novel effective therapies. Mitochondrial disorders have…
SMA Europe takes great pride in inviting scientists and young researchers as well as clinicians and other healthcare professionals from all over the world to…
…TIMESLOT: 14 March 2024 16:00 CET …THEME: New suggestions for management and treatment of patients with Pompe diseas …PRESENTER: Prof. Antonio Toscano (University of Messina,…
As part of the training activities proposed by EJP RD, an 3-day training course on “Training on strategies to foster solutions of undiagnosed rare disease cases” is being organised by…
Exciting Announcement! Join EURORDIS-Rare Diseases Europe for a captivating webinar enhancing Patient Partnership, featuring a unique patient’s perspective from the Chair of our Educational Board,…
…TIMESLOT: 29 fev. 2024 16:00 CET …THEME: Rhabdomyolysis …PRESENTER: Prof. Antonio Toscano (University of Messina, Italy) …BIOSKETCH: PROF. ANTONIO TOSCANO, M.D., born 16/12/1956 in Messina,…
Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people…