Webinar ERN EURO-NMD Registry
Filnemus and ERN Euro-MND are organizing a Webinar on the ERN EURO-NMD registry on Wednesday, June 12, 2024 at 13:00 CEST. This webinar presented by…
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Filnemus and ERN Euro-MND are organizing a Webinar on the ERN EURO-NMD registry on Wednesday, June 12, 2024 at 13:00 CEST. This webinar presented by…
…TIMESLOT: Thursday 6 June 2024, 16:00 – 17:00 CEST …THEME: Health technology assessment (HTA) of genetic therapies …PRESENTERS: Prof. Oriana Ciani (SDA Bocconi School of…
The 57th annual European Human Genetics Conference will take place in Berlin, Germany from Saturday June 1 to Tuesday June 4, 2024. The ESHG conference…
…THEME: Genetic therapies and therapy developments for muscular dystrophies (DMD, LGMD) …PRESENTERS: Prof. Dr. Annemieke Aartsma-Rus (Leiden University Medical Center, the Netherlands) Prof. Dr. Annemieke…
We are excited to announce the upcoming Duchenne Care Conference 2024. This online conference is taking place on May 27 & 28 from 15:00 –…
…TIMESLOT: Thursday 23 May 2024, 16:00 – 17:00 CEST …THEME: Genetic therapies and therapy developments for epileptic disorders …PRESENTERS: Prof. Dimitri Kullmann (UCL Queen Square Institute of…
Recordati Rare Disease Foundation (RRDF) course “Metabolic myopathies – challenges and solutions” will be held in Split, Croatia on May 16-18, 2024. RRDF courses have…
The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe. By bringing together people with rare diseases and patient advocates, policy makers, healthcare industry representatives, clinicians, regulators…
…TIMESLOT: Tuesday 14 May – 16:00 – 17:00 CEST …THEME: N-of-1 to many personalized therapies …PRESENTERS: Terry Pirovolakis, Founder of CureSPG50 and Elpida Therapeutics Terry Pirovolakis, co-founder…
The international congress dedicated to neuromuscular science, MYOLOGY 2024, will take place in PARIS on April 22th-25th, 2024. This 8th edition is expected to gather about 1,000 delegates from…
The ProDGNE team is thrilled to meet you soon in the beautiful capital of Sardinia, Cagliari! On the third and final year of the EJP…
For the fifth time, the Joint Meeting of the Belgian-Dutch Neuromuscular Study Club and the Reference Center for Neuromuscular Diseases of the DGNN takes place…