This page aims to provide a comprehensive listing of meetings and events relevant to the neuromuscular field. If you wish to notify us of an event that should be included in our listing, please on this button below.
In the context of EJP RD’s ERN Workshops, a hybrid workshop on “contemporary outcome measures in neuromuscular diseases” aimed at understanding the advancement of technologies with digital outcome measures in neuromuscular…
Every year, Eurordis, the European Federation of Rare Disease Organizations, coordinates Rare Disease Day – the International Day for Rare Diseases – on the last…
“Versatility is key to the development of health technology for children and young people so that it is adaptive to their social, physical and developmental…
recording coming soon Delivered by Anne Koy, 7 December 2021, 3-4pm CET The speaker is neuropeadiatrician and head of the Centre for Dystonic Movement Disorders…
Delivered by Jorik Nonnekes on 12th october 3-4pm CEST The speaker is consultant physiatrist and researcher at the Radboud University Medical Centre (Radboudumc), Department of…
Research on rare conditions can be a great challenge, both practical and methodological. To counteract small study populations with a rare disease, large, collaborative, international…
Virtual Meeting, 21-25 September 2021
Share4 Rare is organizing a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being an /…
Rare Disease Day 2021 will take place on Sunday 28th February and around the world many awareness raising events have been organised. We would like…
The European Rare disease research Coordination and support Action (ERICA) Project received a positive evaluation for a H2020 grant to establish a structural framework in support of the…
Please, read it online clicking on the link we provide. The European Joint Programme on Rare Diseases (EJP RD) brings over 130 institutions (including all 24 ERNs) from 35…
Owing to the ongoing situation with covid-19, this event will be organised as a virtual conference. Abstract deadline: 6 October 2020 This will be the…