Measuring disease severity in chronic progressive myelopathy
Next webinar organised by ERN-RND will be on : ‘Measuring disease severity in chronic progressive myelopathy’ by Marc Engelen 15 March 2022, 3-4pm CET The…
04 – 05 Mar 2022
Others
This page aims to provide a comprehensive listing of meetings and events relevant to the neuromuscular field. If you wish to notify us of an event that should be included in our listing, please on this button below.
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Future EventsPast Events2022 - Mar
Hybrid Workshop : “contemporary outcome measures in neuromuscular diseases”
In the context of EJP RD’s ERN Workshops, a hybrid workshop on “contemporary outcome measures in neuromuscular diseases” aimed at understanding the advancement of technologies with digital outcome measures in neuromuscular…
2022 - Feb
Rare Disease Day 2022
Every year, Eurordis, the European Federation of Rare Disease Organizations, coordinates Rare Disease Day – the International Day for Rare Diseases – on the last…
2021 - Dec
Health technology designed for children with children
“Versatility is key to the development of health technology for children and young people so that it is adaptive to their social, physical and developmental…
ERN-RND Webinar : Deep brain stimulation in children with acquired dystonia
recording coming soon Delivered by Anne Koy, 7 December 2021, 3-4pm CET The speaker is neuropeadiatrician and head of the Centre for Dystonic Movement Disorders…
2021 - Oct
Functional gait disorders: a sign-based approach
Delivered by Jorik Nonnekes on 12th october 3-4pm CEST The speaker is consultant physiatrist and researcher at the Radboud University Medical Centre (Radboudumc), Department of…
2021 - Sep
The Basics & Beyond Workshop in clinical epidemiological research for ERNs
Research on rare conditions can be a great challenge, both practical and methodological. To counteract small study populations with a rare disease, large, collaborative, international…
World Muscle Society 2021
Virtual Meeting, 21-25 September 2021
2021 - Apr
Research study on neuromuscular diseases: interactive session with families.
Share4 Rare is organizing a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being an /…
2021 - Feb
Rare Diseases Day 2021
Rare Disease Day 2021 will take place on Sunday 28th February and around the world many awareness raising events have been organised. We would like…
2020 - Dec
The ERICA Project: joining forces to integrate research and innovation capacity across all 24 European Reference Networks
The European Rare disease research Coordination and support Action (ERICA) Project received a positive evaluation for a H2020 grant to establish a structural framework in support of the…
The latest EJPRD newsletter is now online.
Please, read it online clicking on the link we provide. The European Joint Programme on Rare Diseases (EJP RD) brings over 130 institutions (including all 24 ERNs) from 35…