Research study on neuromuscular diseases: interactive session with families.

27 April 2021

Share4 Rare is organizing a webinar for families who want to join the Share4Rare research pilot. This research project focuses on how being an / caring for a person with NMD affects learning & work opportunities.

Dr. Michela Guglieri will be there, presenting and taking questions.

This webinar is taking place on Tuesday April 27, 11pm London time/ 12pm CET.

The ERNs are co-funded by the
European Union (Health Programme and CEF)

EU Commission


“EURO-NMD is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are co-funded by the European Union (Health Programme and CEF).
For more information about the ERNs and the EU health strategy,
please visit ec.europa.eu/health/ern