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About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
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What are ERNs?
Why rare diseases?
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Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
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Home
About EURO-NMD
Coordinator’s Message
Governance
How ERNs are approved?
Main Network Functions
What are ERNs?
Why rare diseases?
Network Structure
Healthcare Providers & Supporting Partners
Healthcare Providers
Supporting Partners
EURO-NMD Coordination team
Board Members
Executive Committee
Working Groups & Speciality Groups
Working Groups
Cross-cutting Speciality Groups
Who’s who in EURO-NMD
Cross-Border Healthcare Directive
Add or update website information
How to Reference our Network in your Publications?
Patient
Patient Advisory Board
Patient Representatives
Overview of Patient Participation in EURO-NMD
Patient Journeys
CPMS
Clinical Patient Management System (CPMS)
CPMS Helpdesk
CPMS training videos and FAQ
Education
Educational Resources
Educational Board
Webinars
EURO-NMD Academy (Moodle)
Publications
Summer School
Educational Videos
EURO-NMD endorsement of educational activities
News & Events
News
See all articles
Propose an article for the website
Events
See all events
Propose a new event to be added to the website
Newsletters
Registry
Visit the EURO-NMD Registry website
Registry Hub for Rare Neuromuscular Diseases
Registry Hub Paper out now!
Registry Onboarding has started
Registry Onboarding Dashboard
My EURO-NMD
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Name
Institution
Country
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Marta Campagnolo
Azienda Ospedale – Università Padova
Italy
Marcio Neves Cardoso
Centro Hospitalar Universitario do Porto EPE (CHUP)
Portugal
Valerio Carelli
Azienda USL di Bologna – IRCCS Istituto delle Scienze Neurologiche
Italy
Jennifer Carli
Assistance Publique-Hôpitaux de Marseille, Hôpital La Timone
France
Robert-Yves Carlier
Assistance Publique-Hôpitaux de Paris, Hôpital Raymond Poincaré
France
Elena Carraro
Opedale Niguarda di Milano (including Nemo Clinical Centre)
Italy
Federico Casale
Azienda Ospedaliera Universitaria Citta della Salute e della Scienza di Torino
Italy
Carlos Casasnovas Pons
ICO L´Hospitalet y Hospital Universitari de Bellvitge
Spain
Silvana Castaldi
IRCCS Ca’ Granda Ospedale Maggiore Policlinico – Milano
Italy
Victoria Castillo
Spanish association of patients affected by Arthrogryposis Multiplex Congenita
Spain
Michela Catteruccia
Ospedale Pediatrico Bambino Gesù IRCCS (Regional Hospital Italy)
Italy
Ana Cavalheiro
Centro Hospitalar Universitario do Porto EPE (CHUP)
Portugal